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Old 09-23-2010, 05:48 PM #9
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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My doctor was flat out honest about CCSVI and the procedure. Her friend who's more progressed (EDSS) with her MS had the CCSVI procedure done, was doing better, and then a few months later crashed and burned, and was worse than before.

With that said, my symptoms are very different than the symptoms this lady has, and my doctor said it's definitely worth considering in my case. I received a call from a reference my doctor sent my way, however I haven't had a chance to call back due to being so busy, but it's to discuss the procedure being done in Poland.

I won't pay to go to Poland, or for the procedure. I'll wait for it in Canada. Until then, I'll play my cards in my homeland .
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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