| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
|
|
10-19-2010, 08:59 PM
|
#1 | ||
|
|||
|
Member
|
If any of you experienced abnormal sensations (prickling, water on body, pin or knife jabs) all over body like I do every second of the day, as your first symptoms, how long did it take to have motor symptoms? Or, did the sensations come along with motor symptoms?
Still trying to get a "firm" dx............ |
||
|
 Reply With Quote
|
|
10-20-2010, 12:31 AM
|
#2 | |||
|
||||
|
Elder
|
Nobody will be the same as you. MS is a neurological disorder and affects everybody differently. I didn't notice my symptoms until I had some stark motor symptoms.
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
|
|
Reply With Quote
|
|
10-20-2010, 07:54 AM
|
#3 | |||
|
||||
|
Elder
|
everyone experiences MS differently. For a whole year, I had burning feet. Like I was standing on hot pavement. One MD said it was impossible for it to be in both feet. Another said it was quite normal...even the MDs cant make up their mind. Dont know why, but about a year into it, they simply burned less and less and now it only happens on occasion or with flares.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
|||
|
|
Reply With Quote
|
|
10-20-2010, 10:39 AM
|
#4 | |||
|
||||
|
In Remembrance
|
I experienced all of those symptoms, Invisable, but not necesarily the first sx or all at once.
Hang in there.. 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Lady (10-20-2010) |
|
10-20-2010, 11:44 AM
|
#5 | ||
|
|||
|
Junior Member
|
Beginning in my mid-teens I had these sensations quite often but there was no explanation found for why. At 23 I was diagnosed with MS after developing several more symptoms (confirmed by spinal tap).
Over the years these painful sensations were anywhere from mildly annoying to so bad I wanted to kill myself. Presently I live with 24/7 neuropathic pain where I feel my body is in a vat of hot oil. Very, very often my pain is beyond description. I have been suicidal the pain is so bad. The doctors have not found a medication yet to help me. My neuro explained that this is based on the location of my lesions; not that that relieves the pain. So now I know what causes the pain how do I get rid of it? I will be 49 next month statistcally I should be alive quite a few more years - is this how I am going to have to live the rest of my life? I CERTAINLY HOPE NOT! |
||
|
|
Reply With Quote
|
|
10-20-2010, 12:13 PM
|
#6 | |||
|
||||
|
In Remembrance
|
Welcome, Peg.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Lady (10-20-2010) |
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| The long,long wait is over | Bipolar Disorder | |||
| Local Restaurateur Nears Completion of a Long, Long Trip | ALS News & Research | |||
| At LONG Last! | Thoracic Outlet Syndrome | |||
| How Long Have You | Epilepsy | |||
| How long is too long | Gluten Sensitivity / Celiac Disease | |||
How Long?
My experience
Hybrid Mode
