If any of you experienced abnormal sensations (prickling, water on body, pin or knife jabs) all over body like I do every second of the day, as your first symptoms, how long did it take to have motor symptoms? Or, did the sensations come along with motor symptoms?

Still trying to get a "firm" dx............

Nobody will be the same as you. MS is a neurological disorder and affects everybody differently. I didn't notice my symptoms until I had some stark motor symptoms.

everyone experiences MS differently. For a whole year, I had burning feet. Like I was standing on hot pavement. One MD said it was impossible for it to be in both feet. Another said it was quite normal...even the MDs cant make up their mind. Dont know why, but about a year into it, they simply burned less and less and now it only happens on occasion or with flares.

I experienced all of those symptoms, Invisable, but not necesarily the first sx or all at once.

Hang in there..

Beginning in my mid-teens I had these sensations quite often but there was no explanation found for why. At 23 I was diagnosed with MS after developing several more symptoms (confirmed by spinal tap).

Over the years these painful sensations were anywhere from mildly annoying to so bad I wanted to kill myself.

Presently I live with 24/7 neuropathic pain where I feel my body is in a vat of hot oil. Very, very often my pain is beyond description. I have been suicidal the pain is so bad. The doctors have not found a medication yet to help me.

My neuro explained that this is based on the location of my lesions; not that that relieves the pain. So now I know what causes the pain how do I get rid of it?

I will be 49 next month statistcally I should be alive quite a few more years - is this how I am going to have to live the rest of my life?

Welcome, Peg.

welcome to NT,

i had neuropathic pain in my feet and legs and my presenting sx (symptom) was a gait problem.

i hope they can get more firm on a dx (diagnosis) for you.

Hi invisible,
My first symptoms the doctors could see was tremors. I had them for three years before they figured out what caused them.

As more time went by and more symptoms came about, like numbness to the knees with pain from the knee to the thigh.. which was spasticity. I got in the hospital and tested for a week. No MRI's back then.

Actually they think I had it since I was 16, but whose counting? I was the clumsiest kid on the block. My mobility gets very bad when I relapse. Then I am mobile again after steroids. I hope they find some answers for you.

Peg, I feel for you. I have the burning in hot oil in my feet and legs and sometimes it spreads to my hands and arms. Nothing helps I am sorry to say. At least I haven't found a solution. I have had this 24/7 since 2005 and a dx of MS for over 30 years.

Only five years of burning but I have had the wet pant leg feeling, the itchies, shocks anywhere, bug bite feelings, the numbness and tingling sensations, and tons more that, that come and go.

Fatigue is my crummy one. Bad sleep is my cause I believe. Good luck to you.
After 10 or 15 years some symptoms have gone. My MS dr said they must have burned themselves out. (no pun intended)

My symptoms have always been of the tingling/numbness/strange sensation variety. Looking back I think I've had MS for 4 yrs - at least that's when my first symptoms happened. When I walk, my legs always tingle and my feet sometimes tingle also. When I bend at the waist my back tingles and I get this strange feeling like there's water dripping on my back sometimes when I'm sitting. So far nothing else has happened so I wouldn't worry too much right now. I now this is very hard...believe me...it took me a while to just chill out and not be in a constant state of "waiting for the other shoe to drop". Hope this helps!

Hi Kats, nice to see you..