Yow! Hi guys.. I really have missed this place.

Tina

Welcome to the 4 of you. You have been missed. And I appreciate your input on the discussion of citation. I thought I had given sufficient for folks to search and find additional information on the subject.

There was sone discussion in the first week these boards were up and running of making this a research site with well cited literary and scientific papers that people could draw on from a reputable source. That opinion was stated by only one poster that i saw but seemed to have made its way here.

I am so used to posting new articles or links as they come up yet this thread has stopped that for theis community (at least to the degree it once took place).

Mark,
I cede that task to you. I'm so glad so many people are finding this place.

Hi bluesky and xo (nice to see your names again!) --

I don't believe there was a problem about the Kurtzke citation. The problem was the first post in the thread, which has since been deleted.

It was a fairly long page of text that turned out to be a verbatim copy (minus the diagrams) of a page from the Paul Jones Website. Paul Jones probably did write it.

Some people here were disturbed that it had been posted here with no indication whatsoever of the source. It looked as if Cherie (clinical1) had written it.

It seems like a good idea to me to keep attention to sources (and their dates) uppermost in our minds when posting on an MS message board.

I often go back to a cited source to see what else I can find out or to clear up questions I have.

Citing a source is not only the fair thing to do--it's very helpful to those who are reading the posts.

Hey,

I found out recently that my mum has MS, as I am and have Cerebral Palsy, it was a bit of a shock.

I know she needs help, but I can't really help her with physical things such as vacuuming or cooking. Any ideas of what I can help her with?

Thanks.

Oh Cherie,

Jeez Louise! I thought nothing of your post except that it reminded me about the Kurtze scale which we all know about in detail anyway and made me take a few minutes to see where I was now on it.

I'm sure you were trying to be helpful and give info to people new to MS because sometimes us oldtimers don't have the energy to write things out over and over again.

By the way I received my BA in English Literature so it's not like citing sources is foreign or considered unimportant to me. Sorry you were jumped on. Do we have nothing else to be upset about?
Jean

Hi CPchick,

I'm sorry that your post seems to have been overlooked here.

You're in a tough spot. You want to help your mother who has MS but you're not sure what you can do, since you have the CP limiting your activity.

It's a hard question to answer without knowing just how your mother's MS is affecting her because everyone's MS is different. She might have problems with seeing and reading, or she might not, for instance.

If she does have trouble reading, you could be very useful if you could read to her. Some people with MS have trouble holding onto a book or other piece of reading material. Others have trouble seeing the print. And some have both problems.

Without knowing any more about her MS, I can say that you could help her by trying to keep the atmosphere as relaxed and easy-going as possible, with lots of flexibility allowed. Maybe let her be the guide and ask her to tell you what you can do.

You'd probably get more replies if you'd start your own thread on this topic. I'm sorry I can't be more helpful.

Well, Cherie, here was a perfect example that "no good deed goes unpunished."

We know you're honest as the day is long, and why did a certain poster have to make a stink without PM'ing you first? It all could have been cleared up without acrimony on the forum.

The TOS on braintalk specifically said that materian from PM's should NOT be divulged on the forum--so that poster should delete the info and apologise to you.

I think the very fact that you're there and you care is a big help. perhaps you can share things like this that you find on the net with her that she might find helpful. Welcome.

Hi Cherie,

I always read your posts on BT1 with great interest. You are such a valuable asset to our community.

Thank you for continuing to contribute so much.

MSM

Hi Folks! I just wanted to make note to the previous posting in the thread, all with good intentions and which I hope will result in a good outcome.

For information, The Guidelines specifically list a few of the items that were questionable earlier in the thread.

Inappropriate Content

This is, first and foremost, a self-help support and education community. That means if your message (post or PM) isn't about offering support or information to another person or asking for it, it's potentially not appropriate for our community. Specifically prohibited from our community:

* Advertisements of any sort
* Soliciting others to join another online mental health community
* Flames or messages meant to intimidate or harass others
* Threatening or profane messages
* Messages discussing a private message (PM) from others
* All administrative issues (exceptions will be made from time-to-time for community administrative issues)
* Copyrighted materials that you do not own the rights to, except any educational or research article a member would like to post that is not available elsewhere online to nonsubscribers
* Messages containing suicidal threats or suicidal actions
* Messages containing or condoning illegal acts
* Limit your direct discussion of politics, as people usually hold pretty strong opinions about this topic
* Posts of a mostly religious nature should be made to the Spiritual Support forum
* Triggering material without the use of the Trigger Icon (to be added)
* Anything that violates the Terms of Use for this site (TBD)

The good news is that the thread can be edited by Admin and a simple request (which I will go ahead and do) will remove the misunderstandings, as per their decision.

It's important to not give the full articles when using copyrighted material. (Most sources allow you to quote briefly, with credit and a link.)

It's also important to not in any way refer to something that was ONLY in a Private Message, unless you have the person's ok to share. (That happens sometimes when someone sends you a funny or such and you wish to share it with the board, for example.)

NOW on to MY question. I don't have MS, but I do have Myelopathy (one lesion.) I have many of the symptoms and problems that you with MS have, but do not have the brain lesion interference. I will stay out of this forum for personal use, if that's what you wish, but feel you have a lot of understanding and information I can use. TC! JD