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Old 10-29-2010, 12:03 AM #1
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Arrow I am having the "Liberation Procedure"

Hi my friends,
FYI:

I just wanted to let you all know that my left jugular in blocked and I am going to Albany on Dec. 8th to get the Catheter Venogram to get unblocked. Otherwise known as the CCSVI procedure for MS.

All my veins will be tested while I am on the table, like the Azygous vein in the chest. During the procedure, my Dr. will balloon them open or stent if needed.

We had a few days of vacation and I got the Flu and a UTI. I am on Anti-b's for the bacterial ear infection and UTI. My MS is trying to relapse. It doesn't like the fever or infection. Always something!
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Old 10-29-2010, 03:20 AM #2
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Awwww......there always has to be some bad news with the good in our lives with MS. Hopefully the flu won't be too bad and the UTI will clear up soon. What a way to spend a vacation.

But.....Congratulations on being brave enough to give the Liberation a try!!! I sure hope and pray you'll see a BIG change for the better!! Please let us know how you make out with before and after reports. It sounds hopeful, but I wonder if it would be successful with spms? Good luck!!
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Old 10-29-2010, 06:57 AM #3
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Lady, that's awesome you're being seen for CCSVI and getting the procedure done. I hope it has positive effects for you!

I hope you feel better with everything else - MS, UTI, fever... you poor thing! Thinking of you.
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Old 10-29-2010, 07:29 AM #4
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Good luck Lady

You sure deserve a break. I hope that all goes wel, and that it has a positive effect on your MS.

Lyn
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Old 10-29-2010, 07:46 AM #5
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congratulations and good luck. please come back with all the details for us.
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Old 10-29-2010, 08:59 AM #6
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Congratulations on being able to give this a try! I hope and pray it gives you the relief you're seeking. Please give us a follow-up report. We'll all be sitting on the edge of our seats waiting! I'm excited for you and can't wait for the results. You're in my prayers.
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Old 10-29-2010, 09:29 AM #7
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Thank you for your well wishes. I'm not going anywhere. I'll always be around here, so you will get the up-to-date reports. The good, the bad, and the not so ugly.

I appreciate your kind words. The anti-b's are kicking in. My bladder is no longer on fire and having painful spasms, with little to no results. That was a mean one. The fever is down some. I am trying not to stress out and have a relapse.
Love ya guys and gals
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Old 10-29-2010, 09:41 AM #8
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snagged this off of facebook. thought you would enjoy it its a talk with a neuro about MS and CCSVI.


http://www.komonews.com/home/video/1...b=video&ref=nf
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Old 10-29-2010, 11:50 AM #9
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I'm rootin for you, Lady!!!

I have another friend doing it on Nov. 12th...I'll let you know.
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Old 10-29-2010, 12:39 PM #10
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I am so excited for you. What a great xmas treat is will be if/when you have positive results. I am planning to follow your lead once my toes get better.
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