The flair that earned me my MS dx was a severe bout of double vision. It took about six months to correct itself. Several years later I had Optic Neuritis in my left eye. It hurt and affected my vision. As soon as that cleared up (about 4 weeks) I had it in my right eye. It wasn't as severe and didn't last as long in the right eye.

I won't take IVSM (too hard on the bones) so I usually just wait it out. I take LDN and I believe that helps tremendously in quick recovery and little to no residual damage.

Hi Mike.....I too had optic neuritis back in the "dark ages" -- 1976 and again about a year later. In hindsight, it was the beginning of my MS, but didn't get the official diagnosis until 1990. When the ON was active, I had a blind spot eliminating my peripheral vision. Had a wicked pain over my eye and it was painful to move my eyeball. Eventually this all cleared up.

Now, 34 years later, my vision is quite blurry, especially when I'm tired or the MS is flaring. I have pain behind my eyes if I have to look straight up and severe dizziness if I move my eyes too quickly. Perhaps your flare is causing your eye problem too?? As others have said, find a new neurologist asap.

Take care......

thanks for the info and concern everyone! i got an appt later today (tuesday Nov 2) with my PCP to get a referral to get my eyes checked and i'm going to push for the neuro referral too. not sure if i'm waiting on the MS clinic or the insurance company right now. my flare up had been easing but monday was a bear, just so fatigued and really having a hard time with my right leg.

thanks again, i will let you know if anything comes of this. right now its just slightly blurry vision in that eye, non changing (i have, in the past, experienced blurry vision when tired, but always in both eyes, and this hasnt gone away when im fully rested...)

I have had ON or optic neuritis several times. now I have ...whats the name of that syndrome? someone will chime in im sure. When I get over heated or over stressed I go blind. not "who turned out the lights" blind, but like someone smeared vaseline on my eye glasses blind. Everything gets fuzzy and smeared. I think its uhtoffs (bad spelling) ON is the only reason I will take steroids. I save them for the really bad stuff like eyesight. My clinic wanted me to take them willy nilly and I said NO! Just let my body figure it out, unless I cant walk or cant see.

my vision normally clears once I have cooled down, calmed down or slept for at least 20 minutes. I do find that I can easily get visually confused. Fast scrolling text, fast moving movies, fast moving traffic or other events can leave me rubbing my eyes begging for rest.

Uhthoff's Phenomenon.

http://ms.about.com/od/glossary/g/uhthoff.htm

http://en.wikipedia.org/wiki/Uhthoff%27s_phenomenon

http://www.themcfox.com/multiple-scl...s/uhthoffs.htm

IVSM helped my left (worse) eye. Double vision even if I cover my right! MS...

well, i got good news and bad news at my PCP appt.

Good news:
1)got referral for opthamaologist, appt in december.
2)referral for Physical therapy went thru so i started back in physical therapy, should help my mobility i hope.
3)I finally have an appt with the Barrow MS Clinic on Nov 22! I'm sooo happy maybe something can be done finally!
4) blood work results: A1C 5.6! (that's my blood glucose levels, under 6 is desired. the doctor is actually cutting my metformin to 850mg from 1000! My cholesterol lvls are good, though my good cholesterol is a little low
5) this doctor seems to be on the ball, i'm getting a lot done!
6) I'm down 63 lbs since this whole saga started in july

Bad News:
1) something is definitely up with my left eye, i think it may be a blind spot caused by Optic Neuritis. it doesn't hurt though, at least.:/
2)signs of diabetic kidney disease. protein in my urine. i have definitely noticed i have been peeing a lot and it looks different. and I'm very hot all the time, so I'm drinking iced beverages all day.
3) my potassium is also low, it was 5.2 when i was in the hospital in august, and they were giving me potassium supplement drinks (yuck!) I'm not sure what it is now, but it wasn't dangerously low, so it's probably about the same. and i eat 2 bananas a day and take multi vitamins. possibly from all the water I'm drinking?


I am having the blood and urine tests again this week. we shall see .

i will update if needed when im not so tired

I went to our optometrist who told me to see a neurologist. I knew then I most likely had MS. I had blurry vision that would increase when overheated and too double vision that would come and go when tired.

Back when I had acute attacks, I've had a hallway look a mile long one afternoon. When waking to get a glass of water one night, my right eye was totally blurry...

I was unable to hold my hand up and count how many fingers were being held an inch in front of my eye. When I woke the following morning, my eyesight had gone back to normal. My neuro told me he had never seen MS hit anyone as hard as it hit me, nor have MS lift as quickly as it did for me.

One evening while watching TV, I looked out at a cone like vision; gray off the sides and a small opening in the center to see what was around me. My husband helped me to bed and when I woke the next morning my vision was back to normal.

My first 4 years of MS was one attack after another. Now, I do not have attacks. One reason I can no longer drive is because of double vision where I'm unable to tell which lane I see is actually there. Double vision quickly creeps on now when slightly tired.

Some days now I'm just tired and I have blurry vision. Still get blurry vision & double vision when overheated and/or pushed too far.

Take care.

I have double VERTICAL vision - does everyone else? Or is yours horizontal?

I was driving home from work one day when someone DID turn out all the lights (while driving!!) I slammed on the brakes and just stared out of my window wondering how in the hell the whole world just suddenly went totally completely black.

No headache-no warning-no nothing-as fast as a blink of the eye. It took me the longest time to suddenly realize thatit was MY VISION that had gone blind!!

AAUUGH-so, I sat there - middle of the road-wodering what the **H** to do...then my vision slowly started to turn gray and I could see outlines of shapes.

So I inched my way home - made it safely - thank god for small towns - and went to bed to sleep off the horror of it all. !!! LOL

My Primary doc could not believe I had not driven straight to the hospital ER.

All I could answer for that stupidity was "Well, it went away...and I could see again...so, I figured I didn't want to get lableled "Crazy!" It was tooo weird to go to ER - I thought.

Optic Neuritis was what got me a dx of Ms, after many years of other symptoms (dizziness,staggering occasionally, constipation, MS hug, spasm). I had the scotoma and double vision on and off for 8 years, but always pain if I watched TV or a movie, so I gave them up for that period, and then it just went away. I also had a drooping eyelid which suddenly went away, doctor had before and after pictures, quite dramatic.

But then the doctor didn't want to see me any more after I recovered, and I think the Swank diet had some influence on the recovery, although a prayer meeting was where it happened.

However, then I got two more dx's--yes I'm odd. I got Porphyria, but it didn't seem to influence eyes much. Then I got Polycythemia Vera, (high platelets and red cells) and that gave me total blindness for ten minutes several times. Non-flush niacin 250 mg a day helped that. But I do get foggy vision because of the PV, and I am considering Interferon Alpha-2b to lower platelets. I get phlebotomies to lower red cells.

So I can't say if MS has anything to do with this latter, and different, eye problem, which has been with me the past six or seven years.

I wish I had one of those Christmas icons to put on here. Merry Christmas.

Mariel