My best advice is to go over the neuro's head and speak to his NURSE! the office manager. This way you avoid hearing the attitude of the MS doc and his opinion, and can get the nurse to fill out the proper paperwork to get you treated. PLEASE! dont bash the MD to his nurse. She will be feircely loyal to him, and will make it hard on you if you spit venom at her about her boss who signs her paychecks. Just let her know that you understand he is incredibly busy and you dont wish to bother him anymore than you already have, but really need this form filled out to accomdate HIS wish that you see this special MD in another city. Give her your deadline, and request, and leave it in her hands. Dont give her your real deadline! give her one that is well before your trip. Let her know that the papers MUST be turned in before the trip so financing can be arranged. Dont be pushy! Office managers are quite busy, and happy to help, but are more helpful to nice folks than pushy ones. (arent we all that way?)

Good luck! I hope you can get real answers. its amazing to me that you can get 10 MDs in the same room, at the same time, and get 10 different answers! All they want to do is strut and crow about their discovery. They all want to be published in those medical journals as being the one to find the needle in the haystack. Once they cant figure you out, they are quick to dismiss you as a whiner. Sad, but true. I hope you change neuros no matter what.

Hugs we can do! bet you get alot from this crew.

(((((TRESA)))))

Great advice, Dej...good luck with all of this Tresa...

Thanks guys-I've never been the pushy type - wish I were sometimes!

I did like you said Deja - I just called and told nurse ever so sweetly that the "state" needed the form to be filled out in 3 days (true) so I can get transportation to KC-she was ever so sweet back.

I prefer to keep all bridges intact-if at all possible!

Hurray! you will quickly find the MD doesnt run his office, that nurse manager does, and she is the grease that keeps ALL wheels turning. She can speed your papers thru, or she can slow down and simply take her sweet time getting to your case. My mom always takes some form of cake or goodies to the nurses in the office, because she knows those are the girls that keep that MD going. They LOVE her! she is first in line to get her stuff taken care of, and they volunteer information to her about more services she is entitled to.

Im proud of you!

Thanks everyone - I did get CDs of all MRIs, CT scans Xrays and I even got to look at it all on my own computer-way cool. Then I went n got all medical records of blood work, er visits etc. So interesting to find out ALL that had been kept secret from me.

I DO have hyperplasia of thymus gland with infiltration of various areas. Chronic but mild interstatial lung disease (bulbous disease?), chronic liver disease (hyperlipedimia)Kidney disease (blah,blah,blah), and much more

I was NEVER told about ANY of this!!! Which I am not faulting the docs for as I am to have absolutely NO STRESS in my life - I am supose to be living in a bubble!! Haha.

Stress will affect seizure disorder which in turn affects the autonomic and can drop me in a minute( by affecting heart or lung functions). Neuro was really scared for me. A NY Med Neuro-once head of neurology dept. I was diagnosised by 4 yrs ago.

The new neuro I am going to see is from SW Medical Center in San Antonio and has specialized in MG and MS for over 35 years. I expect we will speak the same Texas lingo twang! Im looking forward to seeing him as he will know the docs who had treated me in Texas years ago.

I cant wait to get a diagnosis and get some treatment going-esp for the MG. Mestinon has been a huge positive affect already for me.

Its just time - seeing as I have now lost bladder to MS per Urologist.

Great news is that my son is about to have his first child (boy) this Dec 1 and my beautiful grandaughter just got chosen lead role (CHristine) for the opera - Phantom of the Opera-YIKES!!! She looks just like the girl who has that role in the movie - but of course-she sings it far better!!!LOL.

Im so nervous and excited for her - she will be absolutely stunning in the performance. And, what a life she will have - singing opera.

So, Ive decided NO surgeries until after her performance this Feb 3-6. Then - do to me what you like

what a mess. i hope you're collecting copies of all test results and copies of your mri's, if you had them. this will all be helpful to the next neuro you find.
and, i hope after all this that you find one willing to work with you for your own benefit.

any good dr needs to validate what their pt is saying and be part of the medical team of which YOU'RE the head.

don't stop advocating for yourself. and, i'd get your psych and therapist to write letters documenting that this is NOT in your head.

you might even want to get another neuro opinion before you're labeled with something you don't have. just a thought.

good luck.