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#1 | |||
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In Remembrance
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My Friend Sue's Liberation procedure update.
A Success, so far.. ![]() Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | 0357 (11-27-2010), Aarcyn (11-26-2010), Dejibo (11-25-2010), dmplaura (11-25-2010), Grammie 2 3 (11-26-2010), jacksonsmommy (11-27-2010), jeep4wd (11-26-2010), Koala77 (11-27-2010), Lady (11-28-2010), NurseNancy (11-26-2010), PolarExpress (11-27-2010), Twinkletoes (11-28-2010) |
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#2 | |||
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Senior Member
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love it, Sally. What part of the country?
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"Thanks for this!" says: | Grammie 2 3 (11-26-2010), Lady (11-28-2010) |
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#3 | |||
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In Remembrance
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New York, I believe she said Albany. Her DSon took her and is paying what Medicare doesn't pay.
I'm anxious to see if the improvements hold and keep coming. I think that eventually all angio patients will need a stent? Praying and keeping fingers crossed for Sue and also for Lady's upcoming procedure. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Aarcyn (11-26-2010), Dejibo (11-27-2010), Grammie 2 3 (11-26-2010), Lady (11-28-2010), Twinkletoes (11-28-2010) |
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#4 | ||
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Member
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Thank you for the post, Sally! I had an MRV Wed, will find out the results on 12/3. I may need to ask for more info from your friend as to the procedure and how she found the Dr in Albany.
I hope Sue does better n better ![]() Linda |
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#5 | |||
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Grand Magnate
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Sally,
i feel dumb asking this Q but i'm confused. we're talking about clearing out blockages in the jugular veins? if we are, how does that connect with MS and sx's? i am not seeing the big picture here but glad sue is doing so much better.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: |
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#6 | |||
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In Remembrance
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__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (11-27-2010), dmplaura (11-26-2010), Grammie 2 3 (11-28-2010), Lady (11-28-2010), NurseNancy (11-28-2010) |
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#7 | |||
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Magnate
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Basically, there's a belief that the blood not draining fast enough is resulting in iron build up in the head, which triggers the auto immune response.
That's the simplest way of putting it I think, correct me if I'm wrong. MS is the result of a vascular condition acting as the catalyst to kick start the disease process in some folks. There's probably many walking around with CCSVI without MS, but the important thing is they're finding that many with MS have narrowing of the jugglar veins.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: |
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#8 | |||
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Elder
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like the built up pressure from the veins not being able to drain correctly causes a reflux or backwash of blood back into the brain, and it drops off the heavy iron deposits, which are what show up as lesions. That is why the lesions tend to group around the ventricle and not too many other places in the brain.
Arteries deliver blood to the brain, the veins carry the used blood away. This is why there is so much debris in the veinous system. I want so badly for this thing to be an answer. I am cautiously optimistic. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: |
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#9 | |||
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Senior Member
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Thanks Sally
![]() When I get mine unblocked next month, I will give honest answers to any questions that you ask. You know I am an honest and open person when it comes to any health issues. ![]() I am blocked in the left jugular, I was tested with Dr Zamboni's protocol. The Azygous vein in the chest, which affects mostly balance, walking, B & B (our plumbing) issues, spinal, arms, hands, legs and feet, will be tested and treated if needed during my Venogram/Angioplasty (Liberation Procedure). My Cranial veins in my head tested fine, TG. If they were blocked I would need to see a Vascular Surgeon. I am going to a Board Certified Interventional Radiologist, MD who is well trained, and has the new equipment to test and treat me. I'll keep you all updated when I get it done, and if you want to know more. ![]() **Sue, I am praying that you see improvements everyday. Thanks for being one of the pioneers in this procedure. ![]() ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | Aarcyn (11-28-2010), barb02 (11-28-2010), dmplaura (11-28-2010), Grammie 2 3 (11-28-2010), NurseNancy (11-28-2010), SallyC (11-28-2010) |
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#10 | |||
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Magnate
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Lady, that's awesome they're doing a full check on you, and following the Zamboni protocol as well!
![]() I'm so excited for you and to hear how things work out ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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