I have been on rebif since June. I can't tell if its working or not. I hate needles and have had a mishap which led to anxiety and not being able to administer myself for about a month. I'm back to injecting myself but 3 days out of the week are terrible for me. Those evenings are not my own and dictated by rebif.

I was curious about Transverse Myelitis so googled it. I ran across this article and found it interesting. I am sure you already know all about it but will share this part with you. Hope you get some relief from you symptoms soon!

"Researchers believe that transverse myelitis often occurs when your body's immune system mistakenly attacks its own tissues, resulting in inflammation and injury to the fatty insulating material that covers nerve cell fibers (myelin) within your spinal cord. Diseases of the central nervous system frequently cause transverse myelitis. These include:

Multiple sclerosis. Multiple sclerosis occurs when your immune system mistakenly attacks the myelin sheath surrounding nerves in your spinal cord and brain, resulting in areas of scarring (scleroses). Mild attacks of transverse myelitis may be the first sign or represent a relapse of multiple sclerosis. Transverse myelitis occurring as a sign or symptom of multiple sclerosis usually manifests on one side of your body only."

http://www.bing.com/health/article/m...verse+myelitis

Thanks, good info!!!

Mocahgirl13 I am sorry to hear the Rebif isn't being so friendly to you either.
I myself still get sick from it so I make sure to take it in the evenings.

I experience flu like symptoms from Rebif, fever, nausea, and the worst is that ache all over, it hurts to just be.

There's times when I miss my shot and feel horrible, I believe that's withdrawal....

I take my shots before bed after 2 ibuprofen and don't really have any side effects. Or I sleep right through it. I may not be on it too much longer. Just found out my ins. co wants me to pay 25%=$675.00 in stead of $50 co-pay. If I can't get this straightened out by Friday, I'll be au natural. Do I need to be indigent or scamming the government to get my health needs met? I work and pay taxes, WTH? This is the only reason I am still on the job. Had I known this when they were looking for volunteers to quit, I would have quit. They were giving packages and that would have paid my mortgage for 6 months.

I'm not too crazy about sticking myself 3x a week but I'm trying to be proactive.

Copaxone (loved it) for 2 1/2 yrs
Rebif (hated it) for 2? months - undocumented - drink 1/2 gal water/day for sides
Tysabri need I say more about no pin pricks? Wish it worked better.
LDN didn't work for me - I couldn't sleep.
Copaxone as of next week.
Oxygen Concentrator almost every night since 2011 which helps me breath thru nose/less dry mouth.
Estrogen/Progesterone but it doesn't seem to be helping. I think Progesterone 4mg is way to low.
4000mg fishoil not heping.
B12 I LIKE! Take 500mcg every moring. Better then coffee.
8000iu Vitamin D. Getting worse since I stopped taking it. Level was 110

Mochagirl13- the system sucks. Bad. I was dx with no insurance. Thankfully the new law says they have to insure my ms bs, the sucky part is it leaves me responsible for a minimum of 900 a month. And I can't work full time anymore and Ssi is denying me for part time disability so how exactly am I supposed to take care of my health? I don't see my neuro like I should because of no insurance, haven't had my blood work taken, and I've been on Rebif for over a year now, its just a poppy situation, and I keep going into flares so im concerned im injecting myself with something that's not working, but since I have no insurance I can't switch my DMD... talk about being stuck between a rock and a hard place....

Sally,

I used Avonex for over 7 years until it stopped working.

Switched to Tysabri until the cost overwhelmed me (even with insurance). The co-pays, lab costs and infusion center costs were more than what some houses would cost. (If only I could infuse myself, then I may still be using it as the drug manufacturer was very accomodating with the price.)

For several years now I have been off of all DMD's, though I tried Rebif once and got sick as a dog.

I must admit, not injecting myself or having to deal with infusions has been very nice.

...Hoping for more data on the angioplasty procedure...

-Vic

I think there is some psychologically therapeutic value in not having to inject medication everyday (or even every other day).

I agree completely.

-Vic