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Old 01-09-2011, 10:41 AM #11
Jalee Jalee is offline
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I used Betaseron for 18 mos., but went off when my red blood cell count went dangerously low.

I just stopped Copaxone in November after nearly 5 years because this past year I lost vision when experiencing three treatable relapses.

Today was my 4th day on Gilenya. I'm hoping this drug will cut my relapse rate so I don't have to do IVSM every 3 months.

Hi, Sally!
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Old 01-09-2011, 03:35 PM #12
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Hi Jalee, my old friend. Nice to hear from you. Where ya been. Did I desert you or did you desert me?

Keep us up to date on how you are doing on Gilenya, OK?

So sorry for the eye problems. Are they ok now?
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Old 01-10-2011, 08:46 AM #13
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I would love to hear the story of your journey on this med. Please keep us updated.
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Elevated LFTs Beta DC 7/07
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Old 01-10-2011, 12:31 PM #14
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Just LDN for me, thanks. Did Copaxone for 9 months, but didn't have enough confidence in it. Have taken the LDN for a couple of years now (I think).

I have an appt. with my new MS neuro in a couple of weeks. She has great faith in the DMD's; however, she suspects I have Transverse Myelitis instead of MS, so she didn't insist I take a DMD for now.
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Old 01-10-2011, 02:08 PM #15
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Only ever did Copaxone for approx. 10 months. The side effects weren't worth the medication for me, and I felt like in my case, it wasn't going to make a difference stopping it.

I voted diet changes over medications for keeping me in remission. Seems to be working so far!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 01-10-2011, 03:45 PM #16
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Just wanted to say...

Happy without meds
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Old 01-10-2011, 07:58 PM #17
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I just wanted to post here, the recent warnings from Betaseran and Copaxone.

Don't use the Triad Alcohol Pads that come with their injection kits. They have been contaminated with a Bacteria!!!!
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Old 01-12-2011, 12:42 AM #18
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I am on Rebif. I can say I don't like it. It makes my body feel like crap and i'm not so sure its even working. Plus it hurts like an s.o.b. when injecting. And it has chinese hamster ovary cells in it, that's gross.
I do think im going to talk to my neuro about the LDN, the whole 'stopping/slowing the ms progression in its tracks' really was a seller to me lol
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Old 01-12-2011, 06:06 AM #19
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Quote:
Originally Posted by SallyC View Post
Hi Jalee, my old friend. Nice to hear from you. Where ya been. Did I desert you or did you desert me?

Keep us up to date on how you are doing on Gilenya, OK?

So sorry for the eye problems. Are they ok now?
I've been around, but RL keeps me busy so I don't post a whole lot. The eye problems are always keeping me aware how precious my sight is. Anything that seems abnormal in my vision, I get checked ASAP.

How have you been?

Quote:
Originally Posted by Dejibo View Post
I would love to hear the story of your journey on this med. Please keep us updated.
Not much of a journey, yet. I just started on Gilenya last Thursday, so it is too soon to tell if it is going to agree with me or not.

If you have questions though, I'll be happy to answer them if I can.
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Old 01-12-2011, 10:56 AM #20
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Default I am curious...
I know some of you had troubles with some of the DMDs. What types of problems were you experiencing???

Thank you!
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BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
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