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06-01-2013, 08:02 AM | #361 | |||
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So.....
Dumb question, if you can have a false negative JCV test, can you have a false positive one? I only had one test, and that was positive and I am still on Ty - have been for nearly four years. Working well, don't want to change, don't want to go on orals (can't see the point if you can still get PML when you are on them if you used to use Ty). Wondering if I should ask for a repeat test if it is possible that it may be wrong. Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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06-01-2013, 08:29 PM | #362 | ||
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Hi Lynn, I think it was 10/10 I had a positive jcv test. Then 1 yr later my test was negative. I have had a couple test at the 6 mth interval done at Quest-negative and close to the correct month for the stratify year test in 2012 - NEGATIVE!! I have been on Tysabri for 6 1/2 years
So yes, it can happen Linda |
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06-01-2013, 08:35 PM | #363 | ||
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06-03-2013, 12:38 AM | #364 | |||
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I will be at the 5 year mark in July. Does that mean I'm entering my sixth year? Not sure how it works.
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On Tysabri and love it. . |
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"Thanks for this!" says: | Grammie 2 3 (06-05-2013), Riverwild (07-24-2013) |
06-05-2013, 10:00 PM | #365 | ||
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Quote:
Natalie, I hope I made sense Linda |
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"Thanks for this!" says: | Riverwild (07-24-2013) |
06-06-2013, 02:13 AM | #366 | |||
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But it totally is the right choice! Can I just reiterate once again how much I LOVE this drug? I've had no relapses, no progression (knock on wood, knock on wood, knock on wood!--I always have to say that). It has allowed me to keep working with little effect on my job because of minimal side effects.
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On Tysabri and love it. . |
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"Thanks for this!" says: | Grammie 2 3 (06-09-2013), Riverwild (07-24-2013) |
06-12-2013, 10:30 AM | #367 | ||
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Yesterday was my 82nd infusion slight headache but, I was good to go.
The eye therapy I had (and do) for balance has kept me from falling-one fall in 13months ! YEA!! Hope all are well Linda |
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06-13-2013, 12:35 AM | #368 | |||
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Linda, what exactly is the eye therapy you do? Can you describe? Congrats on 82. Wow! At some point you and Riverwild will hit triple digits!
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On Tysabri and love it. . |
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"Thanks for this!" says: | Riverwild (07-24-2013) |
06-15-2013, 12:53 PM | #369 | ||
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Hey Natalie, I went to a special PT, a PH'd Jeff Hebert (affiliated with the RMmsC) created it and it's pretty darn simple I stand with legs as close together as o k for me. My thumb (s) (I trade off hands) do side ways figure 8s that my eyes follow without turning my head-I do this for approx 3 min (now-less time in the beginning). Then I stand with my eyes closed for 30-60 secs. Then I turn my head to far left, far right, far left, far right and hold in the middle for a 2 seconds - doing this 9-10 times (but, starting out maybe 5). I do this, hopefully , 3 times a week. I stand in the kitchen, a corner of my cupboards, in case I lose my balance I have what to lean against.
Linda ps Thanks for the Congrats |
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06-30-2013, 05:00 PM | #370 | ||
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I am starting on Tysabri 7-11-13. And I am a little nervous. I've had RRMS SINCE 05 and have been on Gilenya since 2010. Took Rebif b4.
Melissa |
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