I couldn't tell you the number of lesions I had, the radiologist just said, "A lot". My neurologist said, "When there's a significant load, they don't bother to count". So I must have a good pile of the suckers.

With that said, I was guessed to have MS 5 years (at least) prior to my diagnosis almost 3 years ago. So say I've lived with MS approx. 8 years now, 2 relapses, and my symptoms (despite the amount of lesions) have been sensory only.

I saw my neurologist today who said, "I think you just got lucky" (about the fact that I'm stable and not on a DMD or Ty... though he tried to get me on either or today and I held firm).

Have to agree with Snoopy. We're all so very different with our diseases. A coworker has as many as 2 relapses a year, so maybe she's accounting for my lack of them?

MS is like fingerprints. its individual. While some may look the same, no one else can have "your" MS experience. While some are peppered with lesions and no sx, others have very few lesions and are peppered with sx.

Try not to let the facts get in the way of reality.

So true. My MS is not the same as your MS. I wish people without MS could understand that. I wish my Neuro could understand that! It's not a cookie-cutter disease. I tend to look at "facts" with a grain of salt. What really matters is how MS effects you....and only you.

Lesions are a result of the MS. not the other way around. I think! So sometimes the lesions heal, when the MS takes a break, but the MS, eventually, rattles on.

Nobody like me is in this thread. On my first MRI, they said I didn't have many lesions. Thought "whew" Now I know better. So typical of PPMS. Think I had dizzy some 10 years before my DX. Had my DX, thought this isn't devastating like they said. Year 12 I went from Canadian crutches, walker. In year 9 I was in a power chair. Doctor (Neurologist) and I have an unspoken agreement, we tried, no more MRIs, see you next year, call if you need me. I don't walk, little pain, cognitive pretty OK. We're all different. MS (and life). it'll always surprise you.

Nobody like me is in this thread. On my first MRI, they said I didn't have many lesions. Thought "whew" Now I know better. So typical of PPMS. Think I had dizzy some 10 years before my DX. Had my DX, thought this isn't devastating like they said. Year 2007 to 2009 I went from Canadian crutches to walker. In mid-2009 I was in a power chair. Doctor (Neurologist) and I have an unspoken agreement, we tried, no more MRIs, see you next year, call if you need me. I don't walk, little pain, no numbness, never ON, cognitive pretty OK. We're all different. MS (and life). it'll always surprise you.