I do take LDN and have for several years now......without my Neuro's blessing I might add. But, I've been healthier than I was while on a DMD. And I don't have to contend with all the side effects. Lot's of folks here have been "DMD-Free" for years. Even if I didn't have MS I believe I would still take LDN for all the other benefits it offers. Even the pharmacist where I get my LDN filled takes it and he doesn't have MS. Plus, it costs me out-of-pocket less than $200 per year while the DMD can get into the tens of thousands of dollars.

I simply couldnt take it anymore. I felt horrible! I couldnt think, my skin was in horrific condition, and the dents were getting larger by the day. I have constant attacks of pancreatitis, and gastro paresis, and so many other issues. I couldnt think, I was so exhausted I couldnt get out of bed most days and if I did I was back in it by noon. PJs were my uniform. I begged for more than a year to be released, and got stories about how risky my behavior was, and scare tactics to my DH who really isnt educated on this...I feel soooooo much better since laying down my needles. Ask ViseeYou. She saw the dramatic transformation.

If you feel your DMD is working for you, then keep taking it. The side effects are worth it. No one else can tell you what this will or wont do for YOUR MS. they say MS is like a finger print. no two of us have the same one. For me I am so relieved to have some of my life back! I can walk down the street without being winded and suffering chest pains. SCary how far gone I was.

Did my MD keep me on it to make money? I would be quite angry if I thought that was true. I think he seriously kept me on it because its the ONLY tool he has to offer me. Past that, im flying blind, and riding bareback and the only thing he can do is treat my sx. I think he wants to offer me better things, but thus far, none have arrived.

Let's face it, Big Pharma has a lot of our Docs fooled too. They mean well, but, what ever happened to "first do no harm"?

It's especially nifty for the drug companies that whenever a patient complains that the DMD wasn't doing any good, they can say, "Ah, but you have no idea how much worse your MS would be if you hadn't been taking that DMD!"

I've told my neuro that I'll be willing to go back on Copaxone if the MRI next December shows that the MS has worsened considerably since going off it (May 2010).

But when I said that I'd forgotten about the left groin pain attacks I used to have while on Copaxone. They were really crippling. I'm very glad to be rid of them.

Not to mention the bowel urgency problem, which was getting severe. Or the permanent lipoatrophy dents.

Amen to that! I told my MD the ONLY reason I was agreeing to this latest MRI was to show him that the Copaxone did NOTHING! for me other than drain my wallet. If the MRI shows no changes, no new lesions and so forth, it will be a long time before he can get me back in the machine, let alone get me on another DMD. I was just so sick, and they kept singing the same song. "just think how much worse you would feel without it!" and "you never know if THIS relapse that we just prevented, was the one that would finally take your eye sight." Scare tactics!

Thanks for the rant space.

Let's just say that I'm not unconvinced that the trials and and effecacy findings of the ABCRS were skewed and twisted to show possitive results, when there were none.

MS remits, remisses, progresses and doesn't progress on it's own and everyone is different. Some peeps progress fast, some slow, some get lesions, some don't, at speeds personal to each or at least to each group.

It would be easy to say that the old DMD worked for some and not others...KWIM? It musta been the kickapoo juice.. Bahhh!

Ask yourself this question before taking meds like Tysabri, Gilenya and some Chemo drugs....Is the taking of a, possibly, life threatening drug worth the risk to, possibly, "treat" a disease that isn't??