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Old 03-18-2011, 07:33 PM #1
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It's especially nifty for the drug companies that whenever a patient complains that the DMD wasn't doing any good, they can say, "Ah, but you have no idea how much worse your MS would be if you hadn't been taking that DMD!"

I've told my neuro that I'll be willing to go back on Copaxone if the MRI next December shows that the MS has worsened considerably since going off it (May 2010).

But when I said that I'd forgotten about the left groin pain attacks I used to have while on Copaxone. They were really crippling. I'm very glad to be rid of them.

Not to mention the bowel urgency problem, which was getting severe. Or the permanent lipoatrophy dents.
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Old 03-18-2011, 07:59 PM #2
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Amen to that! I told my MD the ONLY reason I was agreeing to this latest MRI was to show him that the Copaxone did NOTHING! for me other than drain my wallet. If the MRI shows no changes, no new lesions and so forth, it will be a long time before he can get me back in the machine, let alone get me on another DMD. I was just so sick, and they kept singing the same song. "just think how much worse you would feel without it!" and "you never know if THIS relapse that we just prevented, was the one that would finally take your eye sight." Scare tactics!

Thanks for the rant space.
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Old 03-18-2011, 08:31 PM #3
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Let's just say that I'm not unconvinced that the trials and and effecacy findings of the ABCRS were skewed and twisted to show possitive results, when there were none.

MS remits, remisses, progresses and doesn't progress on it's own and everyone is different. Some peeps progress fast, some slow, some get lesions, some don't, at speeds personal to each or at least to each group.

It would be easy to say that the old DMD worked for some and not others...KWIM? It musta been the kickapoo juice.. Bahhh!
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Old 03-20-2011, 09:00 PM #4
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Ask yourself this question before taking meds like Tysabri, Gilenya and some Chemo drugs....Is the taking of a, possibly, life threatening drug worth the risk to, possibly, "treat" a disease that isn't??
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Old 03-20-2011, 09:59 PM #5
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I know that I feel better on Copaxone but when I tried the other meds they made me feel worse. If they all did that I would NOT be taking them. I feel better on Copaxone and my MRI's and exams prove that I'm better too. Sometimes diet and exercise is better than meds.
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Old 03-21-2011, 10:33 AM #6
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That is so true, Wiz and that's why I didn't include the ABCRs in my question. I took Avonex for 7 months and believe it helped me but, couldn't live with the horrible sides. I then took Copaxone for almost a year, but it did nothing for me and I progressed from RR TO SPMS.

None of the MS meds are cures so, for me, life and the quality of life is just more important. I have to say, I believe LDN helps me with that.

So, if the MS med you are taking is helping and the sides are not bothering you, killing you or interupting your life, then, I say go for it and woohoo for you..
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