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#1 | |||
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Elder
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sometimes when MDs dont know...they start guessing. I wish they would just say "I dont know, let me get you set up with..." and leave it at that. Instead, they either accuse you of drug seeking, or wanting disability to lazy about at home, or they start tagging fancy labels on you. Sometimes when you hear hoof beats in the distance, it really is just plain old horses!
The medical community has made me really mad over the years. They dont read ALL the test results. They dont read ALL the blood work results. They see the top ten of things and start making guesses. I would go to a specialty place if I were you to just get some straight answers. It is possible to have several diseases at once, but when you start packing rare ontop of rare you have to wonder.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#2 | |||
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Wise Elder
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In reality, to be 30 and have some of those dx wouldn't be "rare." Graves disease hits people of all ages. In my SIL's family 3 of them were diagnosed with it in their 20s. Degenerative disc/joint disease can happen in young people - I was dx with a mild case when I was in my 30s. We have a friend that is only 23 and has a severe case of DDD and DJD. DDD can cause neurogenic bladder issues as well as bowel issues.
MS is solely based on clinical observation and a few tests. Some neuros, like the one that dx me, did not go by the MRI alone as lesions can be caused by many other things including viruses and migraines. At that time, I did not have any clinical symptoms of MS and didn't for a couple of years. Bi-polar can be a little subjective. It all depends on the psychiatrist. A good neuropsychiatrist would be helpful as they have a better understanding of the neurological component and effects on behavior. But the way the drs have been treating you and all you have going on, I'd be a little bi-polar too. ![]() But, I would question the Schuermann's Disease since he could not see a curve on the X-ray. DDD can cause Schuermann's but if the curve isn't there . . .well . . . I think for you, finding a good PCP who will be the gatekeeper of what is going on with you is going to be the most helpful. Find a PCP who doesn't sugar coat things, really takes a look at the whole picture, and will fight for you. ![]() Hang in there! And let us know how you are doing. ![]() |
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