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Old 03-30-2011, 07:44 AM #9
daisy.girl daisy.girl is offline
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Join Date: Feb 2010
Posts: 258
15 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
15 yr Member
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thanks everyone!

I did test positive for the JC Virus!

I have only had two infusions, but after the infusions, I had all kinds of side effects.

I get this dizzy, off balance feeling, hard to hold your head up feeling; and a feeling of shaking on the inside, heart pounding, like some kind of internal tremor, and nausea.

My neuro's nurse practitioner said it sounded like anxiety, and called me in Klonopin.....but it is three weeks since my second infusion, and I still get this heart pounding out of my chest feeling. I have never had anxiety before!

I also have had a period of a 4-5 day long migraine about two weeks after each infusion. I do have severe migraines frequently, but not usually for 4-5 day in a row.

So......I kept telling myself, I will try to deal with all of these side effects until I find out my JC Virus results.

I know that by statistics, I would be 'safe' from PML for the first 11 infusions, but now knowing that I am positive, and all the side effects that I am having, do I want to put myself through 9 more infusions?
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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