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04-14-2011, 11:42 AM | #21 | |||
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I too was scared of the side effects and it does give me more spinal pain right now. I think the ability to "walk better" and not fall ever couple steps is making it worth it at the moment. |
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04-14-2011, 11:46 AM | #22 | |||
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Yes maam. It is a mod med that is oral. It is still in the trail phases and that makes me nervous because it's not very well established. I will talk to the experts and get their ideas when I go. Sally you seem like a very stable, caring and helpful person. I'm happy I met you here.
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04-14-2011, 11:48 AM | #23 | |||
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unfortunately I was told not to cut Ampyra but that sounded like a logical option to me. Thanks for sharing your ideas about this with me. I'm glad to hear that was an option for you with that med you were taking. |
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04-14-2011, 11:52 AM | #24 | |||
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04-14-2011, 11:56 AM | #25 | |||
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04-14-2011, 01:19 PM | #26 | |||
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In Remembrance
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See what your Doc has to say about that....Sheesh, the misinfo out there about this harmless low dose (4.5mg), helper med for MS, kills me.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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04-14-2011, 02:25 PM | #27 | |||
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Wisest Elder Ever
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__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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04-15-2011, 01:37 AM | #28 | |||
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Yes, I am amazed at your neuro's lack of knowledge regarding LDN!!! There are "zillions" of websites, forums, etc., where information is shared. It's such a shame that a side-effect free (for most people), inexpensive pill is dismissed by so many when it can produce great results. It certainly isn't a narcotic since higher doses are used to help people get off heroin. From my experience, the "narcotics" prescribed by our doctors have more ill effects than LDN ever did. Okay..........I'm off the soapbox now!
FYI......SPMS is Secondary Progressive MS. It started off as RRMS then progressed over a number of years with fewer flares but symptoms remain. In other words the downhill slide really begins.
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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04-15-2011, 08:39 AM | #29 | |||
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My neuro says LDN is "hooey!" and he refuses to prescribe it. he also says CCSVI is a "placebo effect" in the main stream right now, and as folks calm down they will see that it was all a waste of money. This is the local guy that told me "you are too old for ms! why are you really here?"
The big girl hospital has more of an open mind, but isnt interested in giving out LDN nor a script to see a vascular guy.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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04-15-2011, 10:04 AM | #30 | |||
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Wisest Elder Ever
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Either one of these might cause you to have to have fewer visits to the Neuro and fewer meds that cause problems of their own. How dare we want to feel better!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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