(((Dej))) You are not whining. You are just stating some facts. It is rough and I can totally relate to some of what you are going through. In fact, most of us can. I wish I could make it better for you, well, for all of us.

Ha I asked to have mine evicted, but I lost the vote. The lesions outnumbered me an decided that not only were they allowed to stay they were allowed to throw parties and play pin the pain on the body.

I have tried making my body as boring as possible so they would want to go somewhere else, but they refuse to budge. They have formed a union and they continue to multiply. Immigration doesn't want them, jail doesn't have room for them, and the court insists they are my children and I must support them.

Hope you are feeling better.

you guys make me feel better. thanks for showing me I am not alone.

Im sorry Dejibo, i go threw alot of the same things with acm cs spinal issues i dont know why we get dealt these diseases would it make you laugh if i told ya i pooped my pants couple weeks ago yea funny now but it wouldnt of been so good in a public place anyway your not alone sometimes life can be a big crapstorm

My friends, especially my boyfriend, have a really hard time comprehending why I get in 'freak out mode' sometimes. I try to explain to them that messages run in the body at like 20,000 mph and due to the damage of this crappy disease, it has slowed all those messages down, so when there's 15 things going on all at once I get anxious and FREAK OUT real quick, I hate it. I had never been like that before MS came into my life. It's quite crazy how it reeks havoc on our bodies. I totally would give mine back in a heart beat. I miss working 40 hours a week, I miss hanging in the hot heat and being active, I hated running, but I would LOVE to be able to run again.

I've had to reduce hours at work, so the owner is only allowing me 9-10 hours a week
My boyfriend said to me the other day when I was taking him to work.. "you're so lucky you can just lay in bed all day and don't have to go to work." and I just broke down and started crying. I know he wasn't trying to hurt my feelings or anything. But I would much rather be working and doing things that healthy 23 yr old do, but I can't because of all the limitations.

AND it REALLY hurts my feelings when my Grandma asks how I'm doing, and I mention that I've had alot of neuropathy that day and still can't feel my hands and she says in return "well if it makes you feel any better my back is just killing me." like no, not at all grandma. it makes me feel worse actually because you're 62 years old, you have years of wear and tear on your body, you are supposed to have aches and pains, I at the age of 23 should not feel like I am 48 on my insides...
people just don't get it.

If you find a place to return this icky disease let me know!

i understand too dej.
i'm sorry you're going thru so much.

i once said to a stranger who i could see was anxious to go by me..."well, how 'bout if i give you my MS, then i could walk faster".
that's my fav comment but rude people don't come along very often.

all you can do is the best you can. but i know how hard it is to just move forward.

Whew! im so busy! MIL is coming on Sunday to spend a week or so, and that means I have been in full on clean/stock and prep mode. She is a wonderful woman, but dangit I just want to relax when she is here, and I wont have to worry about groceries, or errands if they are all done now. We can simply sit and watch italian movies. She is a hoot. Till then, its washing windows, vacuums, changing beds, fluffing pilliows, and making space for her.

IM TIRED! I just wanna sit and cry but that would upset DH too much. HAve you ever been so tired you wanted to cry? well, im there.

Dejibo

The fatigue is awful, especially when you have to do all those chores you were talking about and it's like you're walking through the thickest of mud and can't get the energy to push your way through it. Don't over due it now!

I have often been so tired that I want to cry.