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Old 04-16-2011, 07:40 PM #1
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Old 04-16-2011, 08:02 PM #2
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My Copaxone costs me almost $800 from a 30 day supply and only $50 for the Ampyra (which I'm VERY happy about) and then $10 here and there for other generic drugs. It is very expensive in my opinonin for the Copaxone. I cannot get payment asstance for it either. I do have to insurances and Anthum (Blue cross) kept telling me they will not pay as a secondary insurer.
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Old 04-17-2011, 12:09 AM #3
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It is infuriating isn't it??? Just recently I recall reading about how MS drugs have gone up 20-30% in cost. The article speculated that it was because Gilenya came in at $48,000 and upped the ante for the other companies. They felt, well if Novartis is going to charge almost 50K, maybe we should raise our prices too.

And then combine that with changing insurance plans that offer less and less. My MS drug costs have gone up monthly by $90 over the past year. And I feel bad complaining because I know that other people have it much much worse.
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Old 04-17-2011, 12:22 AM #4
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Another reason that I'm glad that I quit the copaxone. (didnt like the side effects, didnt think it was doing anything)

If I try anything else, it'll be LDN. Just need to find a doctor to give me some.
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Old 04-17-2011, 01:07 AM #5
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And I nearly fainted when I found out my Crohn's med, Pentasa, goes for $1,600/mo if taken at full dose. I am now weaning off of it. So glad I haven't signed on for any expensive MS drugs . . . .
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Old 04-17-2011, 10:36 AM #6
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Quote:
Originally Posted by Erin524 View Post
If I try anything else, it'll be LDN. Just need to find a doctor to give me some.

Idiot, We gave you the name of a Doc who prescribes LDN. Whuz yer problem?
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Old 04-17-2011, 01:20 PM #7
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a weird fear that the person wont believe that I have MS and will hang up on me when I ask for it.

Sometimes when I try asking a doctor for anything, my mouth gets all weird and the words I'm trying to say dont come out right, and then I end up looking like a nutjob or a drug addict, or something.

I think I'll try calling that doctor this week and see if I can be coherent and get it done already.
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Old 04-17-2011, 04:17 PM #8
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Quote:
Originally Posted by Erin524 View Post
a weird fear that the person wont believe that I have MS and will hang up on me when I ask for it.

Sometimes when I try asking a doctor for anything, my mouth gets all weird and the words I'm trying to say dont come out right, and then I end up looking like a nutjob or a drug addict, or something.

I think I'll try calling that doctor this week and see if I can be coherent and get it done already.
I don't see where there'd be a problem with you asking for LDN. It's not a narcotic. It doesn't make you high, or feel any different. The only difference you might feel is less MS symptoms.....and that would be a good thing.
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Old 04-17-2011, 04:15 PM #9
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Idiot, We gave you the name of a Doc who prescribes LDN. Whuz yer problem?
Sally, you're waaaaay to meek and mild!!
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Old 04-18-2011, 09:28 PM #10
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If I didn't have insurance I wouldn't afford these meds. Between the Copaxone and Nuvigil, they cost more than I make in gross pay per year. I sometimes wonder if my employer is aware of the amount of my RX claims or if that is kept under wraps since it is such a large company. I work my tail off so they won't think of me as a burden.
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