[SallyC]

Hi again TL..

[2Hopeis?]

Alot of things are going on in my life. Don't know were to start. I have MS/this should be confirmed around Nov 2nd. I'm 47 yrs old and my name is Heather. There is more to this picture than I even want to take in. My problems began about 12 yrs ago and a few surgerys later and alot of meds. Lyrica is my newest I have been on for about six months and boy do I some issues with this. I am just afraid and feel like no one understands me. Some days I just want to stay in bed and forget but i can't cause the pain is always there and sleep.......What the heck is that? I'm not coping very well these days. I think if I was to ever have another surgery I would sign the paper to do not resusitate. My family is not so understanding. Gee, I really am down right now and can't express how or were my feelings are and what I'm going threw.

[Kitty]

Heather

I'm so sorry you're going through such a difficult time right now. You've come to the right place, though. We've got a wonderful group of folks here on the MS forum and totally understand the need to vent. We understand, we care and we're always here to lend an ear or a shoulder or both.

[Earl]

Yeah, I did show her this site and even encouraged her to join. I did "warn" her that once she admitted to knowing me IRL she might get mixed comments, clearly TT hasn't seen her first post.

She is a wonderful, giving person and her device dog, Jax, is equally awesome. Big ole teddy-bear. I'm glad she joined.

.. and thanks for being nice (so far)

[SallyC]

Happy to have you back home Heather. Sounds like you are a little depressed. It's a symptom of MS and it is one thing that can be helped. See your Doc about an anti depressant. Not all will work for you, but if you find the right one, life can seem normal again.

I'm sorry your family does not understand, but it's hard to understand an illness if you don't feel it yourself, so come here to vent and get it out....we DO understand.

[sadsister]

Hi there, does anyone know if a burst open toe is part af MS? My sisters toe burst open for no reason(the big toe) and I see that another toe is starting as well? And her left foot toes are all bending in wards? Oh yes, her big toe has been like that for more than 6 weeks and still has not gotten better? Really worries! She can only see the neuro in July

[Dejibo]

Hello sister, sorry to meet you under such circumstances. I dont know about the toe thing, I would call her md. you dont want it infected.

[NurseNancy]

hi marge and welcome to NT.
i agree with trying to find a new dr. perhaps and MS specialist or a good internist for a pcp.

keep a sx (symptom) journal with dates and the sx's you have. it will help your drs. and, there's nothing like a good physical exam.

hope to hear more about you.

[NurseNancy]

dear sadsister,

welcome to NT. i'm sorry about what's happening to your sister.
i don't know much about PPMS but others on the board do.

i hope even tho her drs say they can't do anything for the MS that they are not giving up on trying to help your sister with sx's (symptoms).
perhaps a 2nd opinion?

could you possibly get some sort of home health help for her?
hope to hear more about you 2.

[calikris]

Hello my name is Kristina I am 24 and just got diagnosed with CRPS type 2