[lilmama]

Originally Posted by SallyC

Welcome Lilmama.. Nice to meet you.

Are you seeing a Neurologist for your MS DX? One that knows a
lot about MS, would be preferable.

Take a deep breath, stay calm and keep us posted as to how it's
going for you.

Yes, I am seeing a Neurologist. I'm not sure how much he knows about MS. I am actually seeing him tomorrow afternoon. He is my second neuro. The first one that I had seen ended up being a resident doctor which he had to approve everything with the doctor over him. I really liked him and he listened but it was the doctor over him that was not willing to approve for me to have an LP which I feel I really need at this point.

Thanks for your reply.

[Kitty]

Welcome to NeuroTalk, Lilmama.

I hope your appointment goes well tomorrow. Getting an MS diagnosis can be time consuming and frustrating.

Keep us posted on how things are going for you.

[NurseNancy]

dear mstratton,
that is a frightening story. thanks to your post i have learned a lot.
i would trust your gut at first and do a bit of research too. that should be a
good combination.

thanks for your post. i hope your son has recovered.

[NurseNancy]

hi kate,

i'm sorry you're in a WC but glad you found NT.
what kind of work do you do? i had to retire from nursing when i was dx'd in '03.

has your back injury improved?

[NurseNancy]

hi lilmama,

i'm glad you found us. have you had the usual mri's?
what did your clinical neuro exam show? i was dx'd with that first.
then i had the LP and the dx was clinched.

it can take a while to get a dx. try to take one thing, test, etc at a time.
even tho the waiting is tedious and difficult.

let us know how you are.

[elizabeth123]

Hi

I'm Elizabeth. Trying to figure out whats causing all my symptoms. Doc says MS, but I want a dx before I can get peace at mind. Still in limbo

[SallyC]

Hi Liz123, welcome to NeuroTalk.

You are not alone, many here are waiting for a solid DX as well.
I hope you find your answers soon. In the meantime, make
sure your Doc is treating your symptoms, to make the wait
more bearable.

Stay with us and we will try to help you through it all.

[elizabeth123]

Thank you for your kindness

[NurseNancy]

hi elizabeth and welcome,

glad you found us.
the process of getting dx'd with MS can be stressful and prolonged.
why does your dr say MS? what tests has he run? have you had an MRI?
what did your neuro exam show? those are some things that can help in dx'ing MS.

how are you holding up? try to take 1 thing and 1 day at a time. looking ahead won't help and only adds to stress.

please let us know how you are. we care.

[missb]

Hello,

I'm feeling pretty frustrated. First a bit of background information. I have been undiagnosed for many many years. My symptoms were primarily bowel/bladder problems. After surgery for endometriosis my bowel problems have improved. But the bladder stuff is getting worse. I can't feel when I have to pee. I only pee once a day and it comes on all of a sudden and its painful and i have a hard time starting and keeping the flow going. My nephrologist hasn't had any good answers as to why and thinks it might be a neurological issue. But no one gave me a referral to a neurologist, and instead i saw an opthamologist to check out some of the weird visual symptoms I've been having. He did an MRI and they found two small lesions but told me it was nothing to worry about, but they want to follow up in a few months and see if anything has changed. I AM worried. It seems to me that I have a lot of symptoms of MS. Albeit the bladder issues are my biggest concern, there are others like all the little muscle ticks. constant headaches, confusion, mood swings. MY hands sometimes just forget they are holding things and will drop and break cups prematurely. I dont really know what to do. I'm so tired of all this waiting to see how my symptoms change. Its been six months already since MS was first brought to the table. and people keep trying to reassure me that they aren't too concerned. but I don't feel reassured at all Any advice on how to navigate this would be helpful. I feel a bit lost.