[SallyC]

Welcome to NeuroTalk missb, so sorry as to why you are here
but glad you found us. I hope the answers and DX come soon
for you. MS DX can be a waiting game. I do hope the Docs
are treating your symptoms.

[NurseNancy]

hello missb and welcome to NT,
you've found a great place to land. i'm sorry you're going thru all this worry.

i don't know how the medical system works in bc but based on living in the usa i have a few suggestions. try to get a copy of your mri cd and report so that if you see other drs you can just bring your records.

it's best to have an mri with and without contrast so that if you have any active MS lesions they can be easier to see by the radiologist.

it doesn't sound to me like your dr(s) are really listening to you. do you have a pcp (primary care dr)? sometimes they can take the reins in a pt's care and coordinate with other md's. can you take a friend or family member who can help you advocate for yourself in front of the dr?

try to be respectful but firm and tell them something is wrong and you need to find out what it is. urinating once a day isn't good. your bladder can get stretched and then it can be hard to go. also the urine can back up and you can be suseptible to bladder infections.

it sounds like maybe a urologist could possibly help you with that. even if you don't have MS there are ways/meds of dealing with some of your sx's (symptoms).

please let us know how you are.

[LunaMarie]

Hi, I'm not sure if I posted under general intro or here already, but I am currently being diagnosed with MS. I have many of the symptoms (one eye loses color vision sometimes) and have non specific lesions on the white matter of my brain. I have a pending appt with a neurologist. So I know it's not definite, but I have the reflex symptom, and we have ruled out ALS (which my father died from). I would obviously prefer MS of the two.
I have had these symptoms my entire life, but never really read a list of MS criteria. I thought maybe it was fibromyalgia.

At any rate I recently started having nerve pain (as well as severe latex/foam rubber allergy). It may have been triggered by stress.

So, that's about it. I was hoping to learn some things about what tests / meds to look into.

Thanks, Luna

[Kitty]

Hi Luna and welcome to NeuroTalk.

I hope you get some answers once you go to see the Neurologist. It's hard to wait especially when you know something's wrong.

There're many new medications now to treat MS so your selection is bigger now than it's ever been.

Please give us an update on your Neuro visit once you've had it. Lots of nice folks here to answer your questions.

[ANNagain]

Hi Lunamarie.

Welcome to Neurotalk.

Your neurologist will want to see you "over time." S/he will want to know how your symptoms and exam change over three to six months. You may stay in limbo for a while as MS is a disease of exclusion. They will make sure that you don't have B12 deficiency, for example.

Waiting is maddening but necessary. There are neuros who are MS Specialists. You might want to see one of them if your symptoms point in that direction.

Please let us know how you are doing and what goes on w your work up and diagnosis.

Best to you,
ANN

[SallyC]

Welcome home Lunamarie, good to have you here. We will try
to help you through your DX journey.

Take care and thank you for joining us.

[bettycas]

Hi!!! Everyone I'm Betty MS patient since 1998. I'm living in Miami Florida very happy that I can wear my high heels again. Be positive and keep going!!!

[ANNagain]

Welcome Betty!

High heels? Lucky you. Be careful!

See you around the board.
ANN

[NurseNancy]

hi luna, welcome to NT.
i'm sorry about your dad and glad you don't have ALS.

the neurologist will do a neuro exam and take your history.
he may order tests from there.

try to take 1 test and 1 day at a time. trying to look ahead will just cause stress and sap energy.

keep a sx (symptom) journal for the dr with dates and sx's you have.

let us know how the appt goes.

[avengr13]

I guess that says alot. I am happily married for 15 years. I have lived in the Chicago area all my life. I have 2 daughters and 3 great dogs which are a handful.
And still pretty healthy. I have had a little of everything over the years. Numbness, blindness in my eyes. And seizures. Nothing stays long luckily. Recently I started having spacticity which totally sucks. Now I feel crippled with m.s. I try to stay positive with my husband's help but this recent symptom isn't easy. I'm seeing a new doctor today (I have had about 5 doctors through the years and learned that you must actively participate in your health prognosis. )
So hello to all. Any recommendations for spasticity.?
Any comments wou ld be helpful.