[NurseNancy]

it sounds like your drs aren't sure of their diagnostic abilities.
i hope this neuro can tease things apart for you.

in any case, welcome to NT; a great place for support and info.
let us know how the visit goes. try to bring a friend as a second pair of ears.

[SallyC]

Welcome to NeuroTalk Templjg.

Yes, please let us know what your new Neuro thinks.
MS has some weird SX, so, could be.

[cdwyer49]

Hello, my name is Connie I'm new to the group. I was diagnosed with RRMS in March of this year. Currently taking Copaxone, Ritalin, Fiorcet, Zoloft and Cymbalta. My doctors believe that I may have a progressive form and I have another appointment next week with the neuro. Just wanted to say hello and introduce myself

[Kitty]

Hi Connie and welcome to NeuroTalk! I'm sorry to hear that your doctors feel your MS is progressive. There are alot of members here with MS in various stages and we all try to support each other. We have a sub-forum to the MS forum called The Stumble Inn. Here's the link: http://neurotalk.psychcentral.com/forum102.html. We use The Stumble Inn for lighthearted conversations that usually don't involve MS. We try to have fun!

Please let us know how your appointment next week goes. Nice to have met you.

[SallyC]

Welcome Connie, Nice to meet you. Please come in and join us.

[Erika]

Welcome to our community Connie. Hope that you join in some of the conversations.

With love, Erika

[Scharla Foryszewski]

Hello, I am new to the community. I am Scharla from west Texas. I was diagnosed with Lupus,Sjogrens Hashimoto and Raynauds four years ago. About a year ago my eye starting drooping and I was so weak...still am. I was diagnosed with Myesthenia Gravis. I am trying to learn as much as possible. I am no Cellcept...my hands have started peeling. I have been on it for about 5 months. I did not want to start it as I was on High doses of pred. and Methotrexate one time and my immune system was so low I stayed in hospital for 24 days. Until four years ago I was a very active person. It seems I am just collecting auto immune disease...The neuro. said the MG is moving quickly in my body so I have to take this Cellcept. If it does not work IVIG and Plasmpheresis will be next. He also says if the Cellcept does work I might get to stop the Mestinon. It has never been mentioned to remove my Thymus
I am just wanting to learn about MG, any new treatment have most of you had your Thymus removed?
If I take too much Mestinon I have urinary incontinence so I have to adjust it myself. I am getting very weak on this Cellcept and don't know what to do..
Any advice is appreciated.
Hugs
Scharla

[Chemar]

Hi Scharla and welcome,

I have put a copy of your post on our MG forum as you have it on the MS (Multiple Sclerosis) forum

Here is the link to your post on MG so you can check there for replies http://neurotalk.psychcentral.com/sh...d.php?t=192283

[NurseNancy]

hi connie and welcome to NT,

this is a great place for info and support. please join us whenever you need.
i hope your appt goes well. let us know how you are.

[Nina222]

Hello I'm new. I've just started Copaxine about 8 weeks ago and was looking for any and all advice from any other members currently using the same for their MS?? I was diagnosed around 1995, but was military. I had a very hard time excepting any of it, but I truly knew something was wrong. We all know our bodies. However. I did not want to lose my job - raising 2 children then alone, but then no military Dr's would acknowledge it.

Not that I wanted it, but it was quite obvious it has a lot to do with compensation etc. well they finally retired me after 24 years. Perm. Disability, but for anxiety. I became so weak, migraines everyday, hard time getting around etc. same old thing. Finally the VA diagnosed me after ALL these years of struggling and put me on medication. I only received 30% disability pay after all my service and they never included my MS, which obviously arose during my time of service.

I'm confused and a little scared. I finally got over the huge scare; however my daughter seems to think its just a bad case of the flu or something. Many people don't or won't even try to understand that each day can be different. I can hardly move. I get extremely depressed now. But it is getting better. Any advice on anything I shared would be greatly appreciated! Thank you!! keeping the faith!!