[SallyC]

Hi Kemo, welcome to the MS Board. We also have a PN board,
here at NeoroTalk...here =
http://neurotalk.psychcentral.com/fo...aysprune=&f=20

[littletexan77]

Hello Kemo, and welcome - from my relatively limited experience, you have come to the right place!

If you don't mind my asking, I would really like to know what the side effects are that you are suffering from regarding the Lyrica. The reason I'm asking is because I am trying to get my pain dr to switch me from Gabapentin to Lyrica and while I have done my homework, I am wondering if there is something i'm missing.

Thank you in advance!

[NurseNancy]

hi bill,
welcome to NT.

i don't know enuf to answer your Q's but wanted to say hello.
let us know what you find out.

[mstratton]

My 13-year-old son is the reason why I'm here. He was hospitalized in February while taking Flagyl (Metronidazole) for C Difficile. While on the antibiotic, he lost sensation in his feet and legs and lost the ability to walk.

He was thoroughly checked for MS and other conditions like Guillain-Barre. When these tests came back negative, they suggested psychological origins and diagnosed him with conversion disorder even though he has not suffered psychological trauma. With intense physical therapy, he recovered within 2 weeks.

When he was admitted to the hospital, the doctors took him off the Flagyl almost immediately and declared that the C Diff was gone. What they failed to mention to me is that Metronidazole can have a neurotoxic effect on some people. My son began to improve as soon as the antibiotic was stopped.

I'm looking for people who've known of others with the same experience, especially with pediatric patients. The whole experience as left me frustrated and confused about who to trust....the doctors, or my gut?

[Kitty]

Originally Posted by mstratton

My 13-year-old son is the reason why I'm here. He was hospitalized in February while taking Flagyl (Metronidazole) for C Difficile. While on the antibiotic, he lost sensation in his feet and legs and lost the ability to walk.

He was thoroughly checked for MS and other conditions like Guillain-Barre. When these tests came back negative, they suggested psychological origins and diagnosed him with conversion disorder even though he has not suffered psychological trauma. With intense physical therapy, he recovered within 2 weeks.

When he was admitted to the hospital, the doctors took him off the Flagyl almost immediately and declared that the C Diff was gone. What they failed to mention to me is that Metronidazole can have a neurotoxic effect on some people. My son began to improve as soon as the antibiotic was stopped.

I'm looking for people who've known of others with the same experience, especially with pediatric patients. The whole experience as left me frustrated and confused about who to trust....the doctors, or my gut?

I'm glad MS was ruled out. He's so young. I know it must be frustrating to you not to be able to get a firm diagnosis. It really does sound like it was the Metronidazole that was the culprit.

Here are a couple of forums here on NeuroTalk that might be of help to you. You might want to post your story on these forums, too, to see if anyone has had a similar experience.

Medications & Treatments
http://neurotalk.psychcentral.com/forum72.html

Children's Health
http://neurotalk.psychcentral.com/forum9.html

[proudmutt]

i became wheelchair bound in 2004 pretty much overnight after a sheep hit me and the resulting LB injury. That got me referred to washington state's harborview hospital for an op that would supposedly restore my gait. but they found far worse problems at my C-5,6 and surgery was scheduled in 4 days by their head neurosurgeon, and we were sent "home" for the weekend. 2 hours later he called to have me return immediately to the hospital; he'd discovered an MS lesion at exactly that location.
a week later i was discharged with a diagnosis of a very rare form of progressive MS and a recommendation for a better fitting w/c.
the silver lining: had it not been for a back injury that put me in a wheelchair, i would not have gotten the MS Dx, nor the novantrone Tx for the severe inflamation in my T-8,9,10, and there is no doubt whatever that i would be bedridden today.
so i may be one of the world's happier wheelchair riders. plus i recently have been able to go back to work (self employed) after almost - well too many years, and i am so so so happy about that.

[proudmutt]

Originally Posted by littletexan77

Hello Kemo, and welcome - from my relatively limited experience, you have come to the right place!

If you don't mind my asking, I would really like to know what the side effects are that you are suffering from regarding the Lyrica. The reason I'm asking is because I am trying to get my pain dr to switch me from Gabapentin to Lyrica and while I have done my homework, I am wondering if there is something i'm missing.

Thank you in advance!

SORRY TO BUTT IN BUT IM ALL AFLOUNDER HERE - IE LOST!!!!

I AM WONDERING IF THIS IS AN ANSWER TO A THREAD I LOST AND WANTED TO REPLY TO AS WELL.
I FOUGHT A WAR WITH LYRICA FOR YEARS. AMONG OTHER THINGS, IT CAUSED HORRID EDEMA IN MY FEET AND ANKLES, AND IT DIDN'T DO NEAR ENOUGH FOR THE PERIPHERAL NEUROPATHY (PRESENTED AS LIFE ALTERING BURN IN LOWER LEGS AND FEET!)
NOW, I TAKE TOPAMAX/TOPIRIMATE - 150 MG IN A.M. AND 300 MG IN THE P.M. ALONG WITH - BELIEVE IT OR NOT, ALPAHA LIPOIC ACID - TITRATE UP TO 600 MG IN THE A.M. WITH FOOD AND 600 MG AT NITE WITH FOOD AND BINGO - LIVABLE P.N.
A BRILLIANT AND INNOVATIVE NEUROLOGIST CAME UP WITH THIS COMBO FOR ME AFTER I'D TRIED EVERYTHING AND EVERY COMBO KNOWN TO PHARMACOLOGY.
I'LL FIGURE THIS FORUM OUT SOON I HOPE. kate

[Kitty]

Welcome to the forum, Proudmutt.

[lilmama]

Hey everyone! I am 28yrs old and I'm a mother of 2 boys. They are 13 and 6. I'm currently in the process of trying to get a dx. I have a lot of the sx for ms. Most days I am in pain but I try to push past it and take care of my boys. I have had sx for the last 10yrs but had no idea they were all connected.

[SallyC]

Welcome Lilmama.. Nice to meet you.

Are you seeing a Neurologist for your MS DX? One that knows a
lot about MS, would be preferable.

Take a deep breath, stay calm and keep us posted as to how it's
going for you.