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Old 05-18-2011, 02:58 PM #1
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And your body is thanking you for this!

Hopefully mine will be too!

And the fact that your flares aren't lasting as long as they were while you were on the DMD has to mean that our bodies need natural medicine like a healthy diet and vitamins versus chemical drugs! =)

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Old 05-18-2011, 03:22 PM #2
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Ayna - I think it's great you are taking control of your health. There is nothing wrong with that. We each have to make decisions based on what we feel is best for us. We know our bodies better than anyone else and listening to our bodies is important. Additionally, I am a firm believer in the mind/body connection. If you feel confident this is the best decision for you, I do feel that you will start to feel better. (Wow! There's a lot of "feeling" in that last sentence.).

It is so hard to take a drug that makes you feel "toxic" and like crud. I have been off C for a while now. My MS is still there and I still have symptoms on a daily basis but I don't have that toxic feeling like I did. I am in hopes that I can find a dr. locally that will be on board with prescribing LDN for me.

Good luck on your new regime and let us know how you are doing.
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Old 05-18-2011, 04:32 PM #3
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Quote:
Originally Posted by tkrik View Post
Ayna - I think it's great you are taking control of your health. There is nothing wrong with that. We each have to make decisions based on what we feel is best for us. We know our bodies better than anyone else and listening to our bodies is important. Additionally, I am a firm believer in the mind/body connection. If you feel confident this is the best decision for you, I do feel that you will start to feel better. (Wow! There's a lot of "feeling" in that last sentence.).

It is so hard to take a drug that makes you feel "toxic" and like crud. I have been off C for a while now. My MS is still there and I still have symptoms on a daily basis but I don't have that toxic feeling like I did. I am in hopes that I can find a dr. locally that will be on board with prescribing LDN for me.

Good luck on your new regime and let us know how you are doing.
Thank you so very much for the support tkirk! It really helps to have people backing me!

And when you say you don't feel toxic like you used to, that just made my soul so happy!
Toxic is EXACTLY the way my insides feel, and I have a feeling that we were/are experiencing the toxic feeling because it's literally a toxic substance that we fill our bodies with! SCARY!
So I am so very happy to think that my insides could very well start feeling better!

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Old 05-18-2011, 04:33 PM #4
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with each passing day I got a tiny bit of my life back. my strength came back, my wit came back, my stamina came back, my skin healed. The dents from copaxone are permenant but I am no longer grey/green and ruddy at the same time. I started to feel well enough to cook, clean, sew, sit and talk with my family, travel, laugh, understand what they are talking about on TV or get the gist of a book. its been 11 months now and each and every day I get more of ME back!

I eat a clean diet. NO processed foods. Want mac and cheese? make it! want beef stew? make it! No more popping open a can for things. no MSG, no HFCS, no Aspertame, or equal and splenda stuff. want lemonade? make it! I eat a clean balanced diet, and my body thanks for me it. OMega 6 will only contribute to your inflammation, omega 3 will help bring it in line. Get your Vit D3 level up. We CANT find it in nature, you are going to need a suppliment. Cod liver oil is way to high in Vit A to take, just take the pill form. it helps! Have your MD pull a panal of vitamin levels and see if you are deficient.

God Bless you and good luck. Make sure to journal. Keep track of your progress and come back to tell us if its going well.
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RRMS 3/26/07
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Old 05-18-2011, 04:45 PM #5
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Quote:
Originally Posted by Dejibo View Post
with each passing day I got a tiny bit of my life back. my strength came back, my wit came back, my stamina came back, my skin healed. The dents from copaxone are permenant but I am no longer grey/green and ruddy at the same time. I started to feel well enough to cook, clean, sew, sit and talk with my family, travel, laugh, understand what they are talking about on TV or get the gist of a book. its been 11 months now and each and every day I get more of ME back!

I eat a clean diet. NO processed foods. Want mac and cheese? make it! want beef stew? make it! No more popping open a can for things. no MSG, no HFCS, no Aspertame, or equal and splenda stuff. want lemonade? make it! I eat a clean balanced diet, and my body thanks for me it. OMega 6 will only contribute to your inflammation, omega 3 will help bring it in line. Get your Vit D3 level up. We CANT find it in nature, you are going to need a suppliment. Cod liver oil is way to high in Vit A to take, just take the pill form. it helps! Have your MD pull a panal of vitamin levels and see if you are deficient.

God Bless you and good luck. Make sure to journal. Keep track of your progress and come back to tell us if its going well.
Dejibo
I am sooooo glad to hear how well you are doing! and also that you're continuing to do well!!!!



I am going to do all of the above! I know I had low vit d levels back in march, I'd be anxious to see if it's risen any since I have been tanning. Are you still eating read meat? Alot of what I have read says to stay away from it and that makes me nervous about sticking to a healthy diet because I am and always have been an avid red meat eater
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Old 05-18-2011, 06:16 PM #6
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I get most of my supplements from Puritan's Pride. They have awesome online sales. Here's the link www.puritanspride.com. I've also heard that iherb is a good site, too. The link to their site is www.iherb.com.

After much trial and error this is the menu of supplements I currently take:

Multi-Vitamin for Women 50 and older
D3 (I currently take 15,000 IU daily)
B12 (5,000mg daily. Must take on an empty stomach.)
Astaxanthin (8,000 mg daily (two 4mg capsules).
Krill Oil (1,000 mg daily)
Turmeric (1,000mg daily)

I'd love to hear what supplements others here are taking and if there are other good online sites to purchase them from.
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Old 05-18-2011, 06:24 PM #7
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AstaXanthan ROCKS! great choice!
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Old 05-18-2011, 08:30 PM #8
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I'm all for doing what you feel is right for you but imvho I would not be comfortable stopping MS medication unless I had tried all of them and nothing was tolerable, especially for someone so young.

Maybe it is because I'm a nurse also and have seen so many horrible cases of MS but I have to side with your Mom and would be terrified if my daughter stopped one without trying something else.

Once the damage is done there often very little that can be done to repair it which frightens me and motivates me to take my Copaxone. I wish you all the best and perhaps you could seek a second physician's opinion?
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Old 05-27-2011, 01:02 PM #9
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You can also get your D3 from the sun as long as you don't put on sunscreen. My levels were low so I am trying the natural approach after being on a scrip that only raised the levels a few points.

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Old 05-28-2011, 11:34 AM #10
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You know your body and you shouldn't feel bad about your family's reaction to going off Rebif. I wish for you the best on your natural supplements and eating right.

I stopped Tysabri in April of this year. My neuro also took me off Baclofen and Flexeril because he said he thought they were making me tired and sleepy during the day. I do feel more awake without them, and my leg spasms are livable. My MS did get worse after stopping the TY, but I've started on physical therapy to help my weak legs and arms. I've been taking MS (chair) Yoga for over two years now, and it has definitely made a difference.

I take:
Centrum Silver,
Vitamin A
Vitamin C
Vitamin D
Vitamin D3
Vitamin E

Plus I take Klonopin for sleep and Celexa for depression.
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