with each passing day I got a tiny bit of my life back. my strength came back, my wit came back, my stamina came back, my skin healed. The dents from copaxone are permenant but I am no longer grey/green and ruddy at the same time. I started to feel well enough to cook, clean, sew, sit and talk with my family, travel, laugh, understand what they are talking about on TV or get the gist of a book. its been 11 months now and each and every day I get more of ME back!

I eat a clean diet. NO processed foods. Want mac and cheese? make it! want beef stew? make it! No more popping open a can for things. no MSG, no HFCS, no Aspertame, or equal and splenda stuff. want lemonade? make it! I eat a clean balanced diet, and my body thanks for me it. OMega 6 will only contribute to your inflammation, omega 3 will help bring it in line. Get your Vit D3 level up. We CANT find it in nature, you are going to need a suppliment. Cod liver oil is way to high in Vit A to take, just take the pill form. it helps! Have your MD pull a panal of vitamin levels and see if you are deficient.

God Bless you and good luck. Make sure to journal. Keep track of your progress and come back to tell us if its going well.

Dejibo
I am sooooo glad to hear how well you are doing! and also that you're continuing to do well!!!!



I am going to do all of the above! I know I had low vit d levels back in march, I'd be anxious to see if it's risen any since I have been tanning. Are you still eating read meat? Alot of what I have read says to stay away from it and that makes me nervous about sticking to a healthy diet because I am and always have been an avid red meat eater

I get most of my supplements from Puritan's Pride. They have awesome online sales. Here's the link www.puritanspride.com. I've also heard that iherb is a good site, too. The link to their site is www.iherb.com.

After much trial and error this is the menu of supplements I currently take:

Multi-Vitamin for Women 50 and older
D3 (I currently take 15,000 IU daily)
B12 (5,000mg daily. Must take on an empty stomach.)
Astaxanthin (8,000 mg daily (two 4mg capsules).
Krill Oil (1,000 mg daily)
Turmeric (1,000mg daily)

I'd love to hear what supplements others here are taking and if there are other good online sites to purchase them from.

AstaXanthan ROCKS! great choice!

I'm all for doing what you feel is right for you but imvho I would not be comfortable stopping MS medication unless I had tried all of them and nothing was tolerable, especially for someone so young.

Maybe it is because I'm a nurse also and have seen so many horrible cases of MS but I have to side with your Mom and would be terrified if my daughter stopped one without trying something else.

Once the damage is done there often very little that can be done to repair it which frightens me and motivates me to take my Copaxone. I wish you all the best and perhaps you could seek a second physician's opinion?

I am definitely considering it, having no insurance, and no medicaid makes things quite difficult. That's why I rarely see my neuro as is, it's all through the phone.

I do worry about the permanent, irreversible damage, and my age as well. What also worries me is how bad mine all started off. I deteriorated pretty quick when it hit me, and my boyfriend observed it all. I went from normal to a completely uncoordinated, discombobulated mess. Speech/slowed slurred, my breathing was messing up while I was sleeping, choking on my beverage everytime I took a drink, couldn't get my right leg to move, my vision was doubled and foggy, the report from the ER says my eyes were skipping. Sleeping all the time, not remembering anything, laughing hysterically out of nowhere for unknown reasons (that creeped me out), the vertigo was horrid, I was spinning one way and the room was spinning the opposite way. tremors in my hands and legs. spasms and this electric shock on the right side of my brain. oh and the feeling of someone taking a potato peeler to the back of my eyeball all day long.

all of that started in the middle of the night one night in January of 09. It lasted until I was diagnosed, a month later.

I'm am really afraid of experiencing that again.
and I admit, I probably should check out all of the CRAB before I say no more, but I have found that I am one of those sensitive body types. I have the normal side effects and not as normal side effects to all the drugs I have tried already (medications for symptoms) and I have a feeling I am going to have trouble with others. I wouldn't be willing to try any of them but Copaxone. But I just don't want to put drugs into my body anymore. It honestly makes my heart sad. I feel bad because my loved ones are kinda mad at me/hurt that I am doing this. My best friend backs me all the way which helps, but I don't want to hurt my family/loved ones feelings

Thank you Kitty for posting what vitamins you are taking!

Jules makes a good point. If I had not given it a fair try...meaning that I tried both Copaxone and the Interferon DMD's....I would not have felt so comfortable doing what I did. But, I'm taking LDN which has helped me more than any of the DMD's did so I feel like I'm still fighting the monster the best way I can.

Diet and supplements will benefit anyone - not just those with MS. But for those of us with auto-immune disorders it seems to have good results probably because we're reducing inflammation and boosting our anti-oxidant consumption. Not to mention D3 which has been proven to help a whole plethora of conditions.

I lost my health insurance when I had to stop working so LDN, being so inexpensive, was a Godsend for me. Maybe that's why so many folks who have insurance don't try it. The whole "you get what you pay for" is definitely not true in my case! I was paying a ridiculous amount (well, my insurance company was) for the prescription DMD's and I was just getting worse. Once I started the LDN - which is not an insurance-covered DMD, my condition made a U-turn.

If Copaxone or one of the Interferon's works for you that's wonderful. But they don't work for everyone - just like LDN doesn't work for everyone. Everyone has a different chemical makeup in their body so nothing is going to work 100% of the time for 100% of the people.

So I am so heartbroken right now.

Everyone in my family is mad at me.

Just was lectured from my mom, explaining that I will end up in a wheelchair and die early in life by making this decision.

This is my life, my body, and im the one that has to live through all of it.

So why is it I can't get support from anyone but you guys and my best friend.

I want to cry so bad right now.
im so sick of the toxic crap im putting into my body and was so happy/excited to give this a chance.

But I guess since everyone has turned against me and is super mad at me, ill just keep sticking myself to make THEM happy

You can also get your D3 from the sun as long as you don't put on sunscreen. My levels were low so I am trying the natural approach after being on a scrip that only raised the levels a few points.

Gabriella

You know your body and you shouldn't feel bad about your family's reaction to going off Rebif. I wish for you the best on your natural supplements and eating right.

I stopped Tysabri in April of this year. My neuro also took me off Baclofen and Flexeril because he said he thought they were making me tired and sleepy during the day. I do feel more awake without them, and my leg spasms are livable. My MS did get worse after stopping the TY, but I've started on physical therapy to help my weak legs and arms. I've been taking MS (chair) Yoga for over two years now, and it has definitely made a difference.

I take:
Centrum Silver,
Vitamin A
Vitamin C
Vitamin D
Vitamin D3
Vitamin E

Plus I take Klonopin for sleep and Celexa for depression.