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Old 05-23-2011, 02:14 PM #9
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AynaDee AynaDee is offline
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AynaDee AynaDee is offline
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Join Date: Jul 2010
Location: Illinois
Posts: 266
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MM

I'm so very sorry to hear the troubles you are having.
And I know that fear of choking, and you're right, it is VERY scary.

I'm no doc, and I am still really new to MS, but it sounds like you didn't get enough IVSM. I did a 3 day once, and still continued with symptoms, turns out I needed a 5 day to put my MS in temporary check.

Again, I'm no doc and don't have too much room to talk as the right side of my body is painfully numb (how does that happen exactly? how could we be so numb with no feeling, yet a massive amount of pain can exist in that area and you sure can feel that!) and I am in a flare, but am refusing steroids at this point.

Be careful with those meds! I've heard Lyrics is good with treating neuropathy, but if you're on gabapentin, I don't see the point of taking two drugs for the same symptom

And I am also very sorry to hear about the Fibromyalgia diagnosis.

Hang in there MM
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