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Old 03-11-2011, 02:57 PM #1
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AynaDee AynaDee is offline
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Location: Illinois
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AynaDee AynaDee is offline
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Join Date: Jul 2010
Location: Illinois
Posts: 266
10 yr Member
Default Anyone done ACTHAR?

I am in another flare right now. Which really makes me want to STOP taking this stupid DMD because I don't feel I should flare all the time on a DMD, but whatever I'll keep it up....

So I am dealing with numbness in my usual places but on top of the usual, yesterday the numbness had extended from my hip to shoulder on the right side of my abdomen and that's new, then today for the first time ever, I experienced the bowel dysfunction

I am not cool or okay with this. AT ALL. And I am going to be honest, I really want to cry right now, but I am NOT going to. I feel like my MS is just eating me alive.

So since my doctor knows I hate drugs and it's like pulling teeth to get me on them, they came up with a different solution vs. solu-medral/prednisone taper.

They are putting me on an inject-able drug called "Acthar".

Have any of you tried this drug? I am very scared. But she said I won't have to worry about thrush, the manic moods, blood sugar fluctuating, and all the other negatives to prednisone/solu-medral.

I just want to be normal again. I don't like the 'new normal'. But I am just going to stay as positive as I can..

Thanks.
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