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Old 07-17-2011, 08:24 PM #81
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Had an awesome day! I haven't had a low pain day in a very long time. That was today! I got all my chores done, and got a lot of exercise, and R&R, in as well.

I wish I could bottle these days.
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2004 to present - Trigeminal Neuralgia
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Old 07-18-2011, 10:17 AM #82
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My left leg on the outside just above the ankle is experiencing nasty spasms/neuropathic pain off and on...no meds are helping it. It comes and goes, but it hurts like the dickens when it's on.
I'm staying inside as much as possible this week...I don't want the heat to make things worse...
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Old 07-18-2011, 11:25 AM #83
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I'm with you Debbie, keeping inside in the A/C. My advice is for all of youse guys to stay out of this oppressive heat and humidity.. Did ya hear that Dej & Txbatman?
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Old 07-18-2011, 01:08 PM #84
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Feeling overall well today, but staying near the A/C now, very humid out and will likely storm.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 07-18-2011, 01:17 PM #85
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over heated mah self! dangit.
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Old 07-18-2011, 04:17 PM #86
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Dej, you know better, girl...hope you feel better soon...

I am not sleeping well, so I feel like a wet noodle...just sat in my recliner and napped off and on all day...feel so useless
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Old 07-18-2011, 04:51 PM #87
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I hate doctors! Warning -- this is going to be a long vent!

On Friday, I received the results of my colonoscopy which stated I had active colitis. The letter said the doctor wanted me to submit a stool sample and then start a new med. I called the doctor, talked to the nurse in the morning and told her I was on antibiotics and taking miralax as prescribed everyday. Should I still do the test or wait? Should I stop the mirlalx? The antibiotics? She said the antibiotics would not affect the results but she would check with the doctor regarding my questions. Nurse did not call back. So I went in this morning, picked up the necessary vials at the lab, and asked to speak to the nurse. She obviously had not heard back from my doctor yet. Did she go ask him my questions? I saw him sitting in his office. No! She probably is not supposed to. She said she would call me.

So I go to the drugstore and pick up the new med (24.00) and go home. I go ahead and provide them with a sample() since the opportunity presented itself and take it back out to the clinic.

I just got a call from the nurse (4:00). Doctor said I should wait 48 hours before I provide sample and that I should not start taking the new med until they got the results of the cultures. Hopefully since I stopped taking the antibiotic on my own on Friday, it will not affect the results. Luckily I had not taken any of the pills.

That has been my day. Plus it is hot and humid.
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Old 07-19-2011, 07:44 AM #88
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I had a dreadful sleep. I haven't had a BM (sorry to get personal) in many days now, and I look 5 months preggo as a result.

I laid down to sleep last night, and my stomach was a mess of cramping, gas etc. It felt like a wasteland, and was painful. Needless to say I did not rest well, and it took forever to fall to sleep.

Went out for my walk this morning at 8:30 ... it was nice and cool out, sunny too. Until about 1/2 way through the walk, then it was a wall of heat and humidity (the sun woke up and remembered it was summer) and so I had to slow it down a bit and pace the rest of the way home.

Oddly, the H&H affected me more (negatively) today than 2 days of walking approx 20km (Sunday/Monday) combined, and this is the morning humidity, not nearly as bad as that of yesterdays.

I figure the lack of sleep + all else aren't making for a nice 'brew' today. I hope the work day goes by quickly.

Head's doing its usual left side neuralgia pains, but that's the norm. Neck/shoulder muscles are a bit sore today. I did feel very nauseous last night, and blamed that on the stomach, but perhaps I had a bit of a flu?

Chin up and battle on!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 07-19-2011, 11:39 AM #89
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SleEPy..going back to bed..
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Old 07-20-2011, 02:02 PM #90
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It's not that hot (yet) but I'm uncomfortable due to a couple of non-MS issues, plus it's one of those days when it hurts to sit too long AND hurts to stand too long. Definition of too long: about 10 minutes.

So I'm constantly standing up, going "uuuuuhhhhhhhhhhhhh oo ow ow ow", then ten minutes later, sitting down, going "UFFFF, oo ow ow ow". It would probably help me and my husband if I could just do it quietly, but I JUST CAN NOT.
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