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Old 08-18-2011, 12:20 PM #1
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Betaseron didnt like my liver, but while I was on it, I was extremely impressed at the lack of side effects. Like my MS all my damage was silent.
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Old 08-18-2011, 12:28 PM #2
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I didn't do Beta but did Avonex and the side effects are pretty much the same....I couldn't take them..

I suppose you could try it, but get off of it when/if you feel your quality of life deterriate.
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Last edited by SallyC; 08-19-2011 at 12:09 PM. Reason: said could instead of couldn't
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Old 08-19-2011, 06:55 AM #3
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I was on Beta for eight years, and I can't deny that the side effects were nasty, but not all the time. I could go for a few weeks without the side effects bothering me after the first few months.

Then of course they came back if I didn't remember to take paracematol - or sometimes they just came back because they felt like it. They were really harsh and it often made me feel like I had walked under a truck - like having a really bad hangover every second day.

The good news was, that Beta pretty much stopped my MS in its tracks. I am using Tysabri now, I couldn't handle the side effects of Beta anymore and it was doing things to my system that I didn't want (liver).

I wish you all the best in whatever you choose - I think the power that is needed to stop this stupid disease means that no option is without risk.

Good luck in whatever you choose

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