Sparky if you don't need the Ampyra why not see how you walk without it? (get dr. permission if you feel uncertain about walking). No use taking any drug which is not needed.

NewtoNet, quite a few people can't take soy, me being one of them. Those protein drinks really got me when I tried them perhaps 40 years ago. Then I learned that I was sensitive to all soy including those drinks, tofu, soy oil. I can eat a small amount of soy flour if it's in a multi-grain mix, so it is not an allergy, it's a sensitivity.

Just took my morning pills, Mariel, and left the Ampyra in the case. I'll know soon enough if I still need it.

This is why I love having other people with MS to talk to! Sometimes I answer a question with something I either never thought of before, or it prompts me to take action I'd been thinking about!

Hoping that works, Sparky!

I started a whole new diet based on a book called Minding my Mitochondria by Terry Wahls. I was ready to try something different since none of the meds I've tried worked much at all. I was very skeptical but willing to try it. It has made a drastic change in my life. It is not perfect and I get tired of eating the same things over and over but it is definitely better IMO when I'm eating that way and can tell the difference when I deviate from her recommendations.

I also know a guy with MS that sees a neurologist in New York that is married to a nutritionist that do a lot of food changes that has had great success. I'm thinking of going to see him but it would cost me a lot of money. He starts by doing an evaluation for three days in a row and people that live close to him for 5 days, changes eating and reports a high success rate.

I know this diet of Terry, and some people have improved on it, or a similar diet, over the years. But it was not for me. I tried a similar diet years ago--maybe 14? I could not do it, it caused severe pain in the muscles (probably because it was too high in protein and low in carbs for a person like me who has Porphyria). I had to stop after 4 days. I think this is an individual thing. I'm best when on the low-fat diet of Roy Swank, who wrote the MS Diet Book. Been on his diet for at least 25 years and received help from it, although of course not a cure.

I do eat a mostly organic diet, perhaps 80% organic. We have a coop in town the past two years and I'm so grateful to have it here!