FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#11 | |||
|
||||
Member
|
I'll add soy protein and whole food vitamins to the list of "try it" and see where it helps you. I added soy drinks when I couldn't swallow regular protein options (meat, nuts, etc.). Everyone's body needs aren't the same; so be careful with anything suggested here.
Also, flares & meds are different too; keep a diary of your symptoms. That way you can see a pattern (if there is one) of what works and what may not work. Someone here suggested that for me & it really helped. Good luck! ![]()
__________________
It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers. . |
|||
![]() |
![]() |
"Thanks for this!" says: | Erika (12-03-2012), KittyLady (12-06-2012), Mariel (12-05-2012), SallyC (12-03-2012), Twinkletoes (12-03-2012) |
![]() |
#12 | |||
|
||||
Senior Member
|
I replaced Provigil with oil of oregano for fatigue. Still get weak quickly when doing something strenuous but I'm not sleepy during the day anymore. And I take cranberry concentrate gelcaps to prevent UTIs. Those 2 natural supplements I can actually see working.
Fish oil and vitamin D, I take, well, just because they are supposed to be good for us. Are they the reason I'm still very active? Or maybe that's a result of those 3 years of Avonex I took almost 10 years ago. Who knows. I still take diazepam and Baclofen for spasticity and muscle spasms. Generic Lexapro (escitalopram) to ward off pseudobulbar effect (crying [or laughing] for no reason) and Ampyra to help walking. Honestly, I might be able to stop the Ampyra now that I see a chiropractor regularly. That dramatically helps my walking.
__________________
RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
|||
![]() |
![]() |
![]() |
#13 | ||
|
|||
Member
|
Sparky if you don't need the Ampyra why not see how you walk without it? (get dr. permission if you feel uncertain about walking). No use taking any drug which is not needed.
|
||
![]() |
![]() |
![]() |
#14 | ||
|
|||
Member
|
NewtoNet, quite a few people can't take soy, me being one of them. Those protein drinks really got me when I tried them perhaps 40 years ago. Then I learned that I was sensitive to all soy including those drinks, tofu, soy oil. I can eat a small amount of soy flour if it's in a multi-grain mix, so it is not an allergy, it's a sensitivity.
|
||
![]() |
![]() |
![]() |
#15 | |||
|
||||
Senior Member
|
Just took my morning pills, Mariel, and left the Ampyra in the case. I'll know soon enough if I still need it.
This is why I love having other people with MS to talk to! Sometimes I answer a question with something I either never thought of before, or it prompts me to take action I'd been thinking about! ![]()
__________________
RRMS, diagnosed '00 Everything will be alright in the end. If it's not alright, it's not yet the end. |
|||
![]() |
![]() |
![]() |
#16 | ||
|
|||
Member
|
Hoping that works, Sparky!
|
||
![]() |
![]() |
"Thanks for this!" says: | Erika (12-07-2012) |
![]() |
#17 | |||
|
||||
Member
|
I started a whole new diet based on a book called Minding my Mitochondria by Terry Wahls. I was ready to try something different since none of the meds I've tried worked much at all. I was very skeptical but willing to try it. It has made a drastic change in my life. It is not perfect and I get tired of eating the same things over and over but it is definitely better IMO when I'm eating that way and can tell the difference when I deviate from her recommendations.
I also know a guy with MS that sees a neurologist in New York that is married to a nutritionist that do a lot of food changes that has had great success. I'm thinking of going to see him but it would cost me a lot of money. He starts by doing an evaluation for three days in a row and people that live close to him for 5 days, changes eating and reports a high success rate. |
|||
![]() |
![]() |
![]() |
#18 | ||
|
|||
Member
|
I know this diet of Terry, and some people have improved on it, or a similar diet, over the years. But it was not for me. I tried a similar diet years ago--maybe 14? I could not do it, it caused severe pain in the muscles (probably because it was too high in protein and low in carbs for a person like me who has Porphyria). I had to stop after 4 days. I think this is an individual thing. I'm best when on the low-fat diet of Roy Swank, who wrote the MS Diet Book. Been on his diet for at least 25 years and received help from it, although of course not a cure.
I do eat a mostly organic diet, perhaps 80% organic. We have a coop in town the past two years and I'm so grateful to have it here! |
||
![]() |
![]() |
![]() |
#19 | ||
|
|||
New Member
|
Quote:
My diet was supplemented with natural organic products such as green drinks, spirulena, chia seeds, hemp seeds, fish pure oils and more. Another important factor during my healing process was to explore new ways in which I could keep my thoughts constructive and positive. I found that by using visualisations techniques, neuro- linguistic-programming (NLP), and being kind to my self was very effective indeed. Over ten years have past, and here I am, alive, well and feeling strong and healthy. I will be fifty in 2013, and I enjoy, cycling, jogging, QiGong and generally keeping healthy. I hope this has helped you with your question. Bye for now. |
||
![]() |
![]() |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Dragon Naturally Speaking 11 Premium | The Stumble Inn | |||
Dragon Naturally Speaking 11 Premium | Computers and Technology | |||
Marysville man's help comes naturally | ALS News & Research |