Since I messed up my list in the first post...


I forgot to add (haha)

Cognitive issues
Muscles spasms (random muscles twitch along my legs and sometimes my arms...sometimes it feels like some big worm is crawling around)


..and I'm sure some other things

Have you seen a Neurologist that specializes in MS? That would be my first suggestion. There are specific tests an MS specialist can do to eliminate certain conditions from the list of possibilities.

Vitamin deficiencies can cause many of the symptoms you've described. You'd probably need to be tested to see what you're lacking in. I take Vitamin D3 (10,000 IU daily) and it has helped me alot. I also started B12 (needs to be Methylcobalamin) at 5,000 mcg. daily. This needs to be taken on an empty stomach otherwise you won't be able to absorb much of it and it will be pointless.

There are just so many conditions that present with the same symptoms as MS does. MS is a hard condition to diagnose and all of us have different and varying symptoms. Some are affected visually while others have difficulty walking and balancing. And some of us have a little bit of everything! The longer you read and post here the more you'll see that even though we all have MS we're all affected by it very differently.

Welcome, Monkey! Sorry for your health issues, but glad you found us!

I hope your new neuro will LISTEN to you and be HELPFUL. Those darned docs who take our $$$, but don't give us anything in return are just lame.

I do hope you'll continue to post and get acquainted with the good folks around here. This is a nice place to be for help and support.

Make sure you give us an update after your appt., k?


Oh, BTW, who's Mr. Wonderful and when is the wedding date?

I haven't. I've just been told to see a neurologist so I made an appt. with one locally. Vitamin D (50,000iu a week) made my symptoms far worse than they are (so does heat though :\) so they PA took me off of it. I've been taking B12 3,000 mcg daily under the tongue on an empty stomach for a few months now. This was prescribed by the herbologist.

I did read a lot of threads the past two days..and somehow made it onto page 82. I can definitely see that everyone has their own "quirks" as I like to call it

Thank you

Oh gosh, yeah I was sooooo ****** about the rheumatologist. I just got the bill several months later...made me even more mad.

I'll do my best. I'm usually pretty active in forum communities and have administrated some forums with around 80,000+ members before so if I find a place I like, I'll stick around. You all seem pretty great and active. Other forums about MS seem to be pretty quiet. (last post august 2010 )

Will do! I'm really quite nervous

Mr. Wonderful moved here from England in 2007 because of me. We're hoping next august but because I've pretty much lost my job recently and can't really work anywhere else with my health...well it costs a lot to get married. I feel bad for him though and have given him the option to leave many times...he's watched me go from a very active and healthy girl....to one who can't go out anywhere and is stuck inside. He'd just hold me close and sing "Just the way you are" by Bruno Mars. Of course I'd start bawling...but while I was my sickest he proposed. I know he loves me...

sorry you are having helath problems, reagrdless of what it ends up - limboland sucks.
Congra on being engaged. You are both lucky to have found someone who completes you!

Thank you very much!

(((Monkey))) I'm sorry you are going through all of this. Sometimes it takes a while to get a definite dx of not only MS but other conditions/diseases as well. Hang in there and be persistent. Let us know how it goes with the Neurologist.

BTW - Hang on to that man. He sounds like a winner.