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#1 | |||
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Grand Magnate
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now that is not a good example to set for others, taking so long to be dx'd.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | SallyC (10-05-2011), Twinkletoes (10-09-2011) |
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#2 | |||
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Elder
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I "only" had about a year and a half of limbo, and when I got my diagnosis I wept with mixed emotions, one of which was relief. Sure was hard to explain.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#3 | |||
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Magnate
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That's just it. Those of us who have heard the words from the horse's mouth (so to speak) know exactly the mix of emotions involved. It is very hard to describe to someone who's never been through such a life-changing diagnosis.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (10-06-2011) |
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#4 | |||
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Elder
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Funny thing is I never really thought of myself being in limboland. And if having an excacerbation brought me one step closer I never wanted to have one. I was very comfortable being labled as clinically probable for the rest of my life. My husband was always sceptable, he wanted them to find a stroke. And my neuro was begining to wonder since I have been so stable all these years and the MRI the same. So for them I am glad it is finally settled. But I was fine with it last 1997. My neuro has always treated my 'condition' with the utmost respect. Routine MRIs, Avonex, yearly exams, everything she would have done with any other MS patient. So I was satisfied and really had no interest in being anything else if it came with another positive test or symptoms.
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