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#11 | |||
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In Remembrance
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Yeah, but my Correlle still has to be washed..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: |
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#12 | |||
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Wise Elder
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Congratulations on finally making it out of Limboland. I'm sorry you landed on the uncharted territory of "your" MSville.
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#13 | |||
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Magnate
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Quote:
![]() Love love love Corelle!!! Sorry to thread-jack you doydie. Back to you <3 ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (10-05-2011) |
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#14 | |||
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Grand Magnate
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now that is not a good example to set for others, taking so long to be dx'd.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | SallyC (10-05-2011), Twinkletoes (10-09-2011) |
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#15 | |||
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Elder
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I "only" had about a year and a half of limbo, and when I got my diagnosis I wept with mixed emotions, one of which was relief. Sure was hard to explain.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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#16 | |||
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Magnate
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That's just it. Those of us who have heard the words from the horse's mouth (so to speak) know exactly the mix of emotions involved. It is very hard to describe to someone who's never been through such a life-changing diagnosis.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (10-06-2011) |
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#17 | |||
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Elder
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Funny thing is I never really thought of myself being in limboland. And if having an excacerbation brought me one step closer I never wanted to have one. I was very comfortable being labled as clinically probable for the rest of my life. My husband was always sceptable, he wanted them to find a stroke. And my neuro was begining to wonder since I have been so stable all these years and the MRI the same. So for them I am glad it is finally settled. But I was fine with it last 1997. My neuro has always treated my 'condition' with the utmost respect. Routine MRIs, Avonex, yearly exams, everything she would have done with any other MS patient. So I was satisfied and really had no interest in being anything else if it came with another positive test or symptoms.
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#18 | |||
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Member
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You are the conquering hero! When I was finally diagnosed after decades and decades of being told it was all in my head, I considered it a triumph of my will over all those medical “professionals” who were so quick to dismiss me. I seriously considered putting together a letter of some sort to send to some of my past doctors pointing out how obvious my symptoms were, and how dumb they were for missing the diagnosis. I didn’t, of course. I have more productive things on which to spend my time. Knowledge is power. Spread this power lavishly in all the corners of your life.
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Life really is a bowl full of cherries once you learn how to spit out the pits. |
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"Thanks for this!" says: | dmplaura (10-08-2011), hollym (10-08-2011), sabimax (10-08-2011), SallyC (10-07-2011), Twinkletoes (10-09-2011) |
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#19 | |||
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Member
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It definately feels better to know the truth........
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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#20 | |||
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Magnate
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so girl, you were on Avonex with out the DX?? I just wonder as I am that limbo lander since first numb/tingling stuff in face in hmmmm started after having Jasmine so she just turned 12.... so LONG time....
I pass MRI exams, pass other tests, but then getting worse year to year.. with the MS like sxs.... The side doctors, like my latest ER visit dr, and neuro pysch that did my memory testing in 2006 and others all will be like hey have you been tested for MS..?? hehe.. but neuros I have met are like nope not MS your MRI is normal.... although latest Neuro is good to at least know it is elephant in room... but not into giving meds without DX.... anyhow... sorry babbling... had another MRI of brain and neck the other night, this coming week should hear from Neuro if anything shows up... but I am so ready to have a name for all my crap... if I am having the sxs why would giving it a name be any worse... might throw a party if told MS finally someday.... bittersweet stuff... hugsssssssss
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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