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#8 | |||
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Grand Magnate
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Twink,
All my neuros have been MS neuro - some University of Maryland MS Center, Some Johns Hopkins. My current is running Cliniocal trial on Fingolimod for PPMS. A past JH neuro guy, another MS Clinical trial. Every doctor has their own way. One put me on ADs and never followed up. My current poo-poos trying LDN but put me on bird poison (sorry, they call it ? and went from $31 to have generic compounded to Big Pharma's $1500.00 a month drug.(Fampridine?) My current neuro and I agree, he can do nothing right now for PPMS me and MRIs are a waste of time right now. He treats symptoms and/or problems as they arise. He answers all e-mails within hours and I never abuse the privilege. Maybe that's as good as it gets.
__________________
Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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