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Old 11-20-2011, 01:53 PM #8
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Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
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Twink,
All my neuros have been MS neuro - some University of Maryland MS Center, Some Johns Hopkins. My current is running Cliniocal trial on
Fingolimod for PPMS. A past JH neuro guy, another MS Clinical trial. Every doctor has their own way. One put me on ADs and never followed up. My current poo-poos trying LDN but put me on bird poison (sorry, they call it ? and went from $31 to have generic compounded to Big Pharma's $1500.00 a month drug.(Fampridine?)

My current neuro and I agree, he can do nothing right now for PPMS me and MRIs are a waste of time right now. He treats symptoms and/or problems as they arise. He answers all e-mails within hours and I never abuse the privilege. Maybe that's as good as it gets.
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Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
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