Hi Azlin and welcome to NT! Sorry you have to be here, but under the circumstances it's a great place to be with all the friendly, informed people more than happy to answer questions you might have. Hang in there....we're here if you need us.....

hello and welcome

Thank you everyone, it's nice to know I have a place I can come and talk with others who understand. Most of my family believes it's all in my head and I was beginning to believe them before I saw the neurologist. She of course agreed it's all in my head, but for different reasons than my family believes

My husband is starting to come around and understand more of what's going on which has been a big help. We've got 3 little ones and sometimes I just can't keep up with them and the house.

I was seeing my neurologist every 3 weeks, so I was caught off guard when she suddenly wanted to follow up in 6 months. I guess I felt like she had given up on me. But, I understand that we may be in the waiting game to see if anything changes.

A symptom journal is a good idea, I'm going to start that today. I was sometimes having trouble remembering what had happened over the 3 week span... 6 months would be very difficult to recall when I go back for the follow-up.

Thank you again to everyone for the warm, understanding welcome

Hi! Welcome to NT.

Those of you with small children to raise have my utmost respect and awe. I remember how difficult it was to raise my two boys in seemingly good health. I can't imagine trying to do that now.

I'm glad to hear you've got a good Neuro in your corner. It's a long process for most of us to get a diagnosis. Hang in there and keep coming here. Lots of fantastic folks who really do understand.

Azlin, it sounds like you have a great family with an understanding Hubby Even though he can't possibly know what you are going thru, it is admirable that he is there for you.

This is your new home away from home. Please abuse it.

Welcome Azlin! As others have mentioned, you will find lots of information and support here.

I'm sorry you are going through this. It sounds as if your neuro wants to wait and see if things change and/or if you have a flare up of more symptoms (MacDonald Criteria - space and time). Hang around and I hope all goes well for you.

hi azlin and welcome to NT.
i'm glad you found us.
i see you've already gotten some great advice.

i would start to get copies of your test results, a copy of your mri disc and a copy of the report. as time goes on it will be important for you to have your own records. plus, reading the md reports may be very informative.

make sure you ask for the mri to be with and without contrast. contrast can give the dr a better picture of things.

wow, 3 little kids. that's a handful. how old are they?
hope to hear more about you.
take care.