Also, the unpredicability of fatigue makes it so difficult to have definite plans throughout the week. I have been thinking about volunteering at the hospital or library, just to get out of this house and interact with other humans.
But if I have "one of those days", there is no way that I would be able to function. Now, when fatigue hits, I can barely walk, let alone think coherently.

It bites, it really does. This is when the victim mentality kicks in...that is so hard to keep at bay.

I don't bother calling the neuro about it...they just ask, are you sick? do you have a UTI? a cold? They can't do anything about it anyway.

I WANT MY LIFE BACK!!

OMG that is so funny Blessings and sooooo true.. I remember my GMother wearing a bib when she ate. Even at a restuarant she would wear a napkin like a bib. Like you do when you're eating lobster.

I'm always dribbling something that drops before I get the spoon to my mouth. Yes, I said spoon, because it's safer than a fork.. And I hang a paper towel on my chest/lap, if my meal is especially juicy.

It's hell getting old, I tell ya.

I did this just today.....dripped the juice from a tomato on the front of my shirt. When I got up it looked like a two year old had been sitting there! These are the times I'm glad I eat alone.

I am bummed because I manage about 3-4 hrs. per day of productivity. Then it's rest the day away. I am not accustomed to being this inactive. I'll be taking a lot of notes to my next dr. visit.

Thanks for being able to spout off.

Any time Somebody's Mom.

I'm so glad to hear you say that. I can't make it through the list either. I read where Anne Romney said she was sometimes too fatigued to talk and that was music to my ears. No one gets what ms fatigue is like and I get that look so often. You know that look that says "you slacker." For the last several years the thought all I need to do overwhelms me and I can't seem to even move. Thanks for your thoughts. I needed to know someone "got it" today. Sues1697

Welcome to the community, Sues...I agree with you that sometimes we just needs to know that someone gets it. When I connect with someone else that's on the same page with fatigue, I feel almost euphoric!

The closest I ever came to that kind of fatigue before my MS diagnosis was after I had just been home a few hours after surgery. I thought I'd make a sandwich. I got it half made and was so exhausted physically and so brain-tired that I just left the bread and stuff on the counter...didn't know if I could make it back to the living room chair. I was weepingly tired.

Excellent description. I was like this yesterday. And even part of today. I waaaaay overdid it yesterday and couldn't even form a sentence when I got home. Too tired to even think OR talk. I took a 2 hour nap this afternoon and feel so much better now. How on earth did I used to work upwards of 60 hours a week and still be able to function?? Fatigue is my most limiting symptom.

If I dont have any on the front of my shirt, I didnt eat today. I swear I just cant seem to eat without looking like a 3 year old. a bib may not be a bad idea.

Im too tired to care.

I know, Dej. Some days I'm doing good just to fix myself something to eat....let alone worry about whether or not I got it on my clothes. That's why I jut stay in my jammies some days.

It's taken me two days to begin to feel somewhat "normal" again.....whatever that is. Normal for me is tired for someone else. Tired for me is exhausted for others. Exhausted for me is immobile for some folks.

My oldest DS was asking about fatigue when we were out on Thursday. I tried to explain it to him and couldn't really make him understand. Once we got home and he witnessed me not even being able to get up to tell him goodbye I think he got a glimpse of it.