wow! Your b12 was higher than mine was. Mine was 345 back in 2007 (doctor claimed that was "normal".) I havent had it checked again yet, but I'm going to ask my physiatrist about it when I see him next week.

Welcome to NT! I'm sorry you are having such a difficult time right now. You will find lots of support and great information on here.

I have been on a low dose of Neurontin for years. I am fortunate and don't have many side effects. I occasionally get a little loopy when taking it but that's about it. I have never experienced back pain while taking it. You can call the pharmacist and ask if that is a common side effect of Neurontin.

MrsD ... I had that test done Jan 25, 2012. Glad you can retire MrsD! You are funny and make me laugh I needed that tonight.

Welcome to NT...sorry the entry fee is a stupid disease, or symptoms that mimic it...

I was on gabapentin (same as neurontin) for neuropathic pain with my first neuro. My current neuro only prescribes it when he is giving me time off of Requip, used for restless leg syndrome. I find that gabapentin didn't do much for me pain or spasm wise.

Keep plugging away until you have an answer...hope you're keeping a symptom journal with dates and symptoms, as well as a list of questions you want answers to...

Keep us up to date...

Welcome to NT, sorry to hear about the possible DX.

The limbo land one travels through can be rough with knowing something's up but no definitive answer. Hang in there! They'll figure it out.

Hello all,

I just received my results of the MRI taken Feb 13, 2012. My dental braces prevent any clear images on the MRI. They don't see any clear evidence of demyelating disease (good news). And they can't get any image of the orbits. Braces come off in Dec. My orthodonist said he could take the braces off if need be and at no charge, nice man! I see the opthamologist on Monday for the results and see where we need to go from here with the new symptoms of my optic neuritis. I see the Neurologist in April. Guess I will deal with the symptoms until then. They did see an increased signal within the subarachnoid and extra axial spaces of the frontal lobe. Have no clue what that means. Neuro still wants me to take the Neurontin and has increased it to 300 3x a day for the legs and the nerve jabbing pains I feel on the top of my head, my face and feet. This has increased on a daily basis. Limbo land is not fun.