The last couple weeks something keeps flaring up. I'll be okay a couple days then feel horrible a few days.

Honestly, I can't say what it is. I can describe it: I ache, am so tired I can't even cry and this last time my calves and feet burn and sting.

But what IS it? What is bringing it on?



Frustrating.

I can't keep up with stuff to do without this laying me flat for half the week, much less play catch up from it. Makes me mad.

Under normal circumstances, I'd fel better knowing I have an appt with my PCP and neuro soon. Well, I do feel good I have those appts, but still. It's been my experience nothing that ever happens to me is something that's easy to figure out.

I can go see 'em, but that's not saying I'll come home knowing what's wrong or what to do about it.

And then I am living in the land of *normal* people.

Anyone who reads this post will nod their head "Been ther done that!"

But you know your family, like mine, it has to be explained and some get it, some don't.

Ya think after 4 days of me on the couch maybe they could wash their own clothes? Maybe they could put the dogs out? Yeah, right.



The thing is I don't even know why I feel so lousy.

Oh brain, I SO understand how you feel.
I was at the point that I was even thinking it was all in my head right before my DX. Why in the world would ALL my test look fine but it was clear something was wrong with me went thru my head everyday! Hang in there, you will get a DX, soon I hope.

Oh Brain, I am sorry you are strugling so.

Are you asking what is causing your symptoms then??

I believe the ONLY way you'd know definitely is to have a scan done by a someone trained in NRT or nutritional response testing. ITs getting more and more available. It READS your body's sytems including ALL areas of the brain. The person can type in your symptoms too AND it comes up with recommendations nutritionally.

I just went in last week, and he immediately got the little testing bottle that had SUGAR in it. He assumed, I did too that sugar was raising havoc in my system. It usually does.

So.. dont forget to check your diet and the chemicals you are putting INSIDE your body then add, stressors indirectly (mental emotional) and then externally.

We are just vulnerable or more sensitive. I figure I"ll always be on something nutritionally as My diet is not perfect and I waited so long for correction.

Good luck my dears... Remember I CARE !!

Warmly, Jan

Brain, I'm sorry you've been feeling so horrible. I'm right there with you. I've been in so much pain lately that it's unreal. About a week ago though, I started taking Alieve. I take one at night before I go to bed and one in the afternoon. My pain levels have been cut drastically. (I tried going without it one day to see if maybe it was just a fluke and the pain had stopped. Boy, did I find out different in a hurry!) The relief may just be temporary, but it sure is great while it lasts.

I was just trying to make it until my appointment with my MS specialist, which was supposed to have been last week (I had scheduled it eight months ago.) But they called me the day before to cancel it, put me on a "work-in" list, and that's the last I've heard. (Her "work-in" lists can sometimes take months!) I finally just requested a referral to a new neurologist, which my PCP is working on now.

This is all so frustrating, isn't it. There are times I just want to stand in the middle of the floor and have an old-fashioned temper tantrum to try to get someone to listen to me and help me. But, of course, I don't have the strength to do that either.

And no, "normal" people just don't understand. We just bought a new Rainbow vacuum cleaner last week. Sunday I tried to clean our bedroom, but could only do half of it before I konked out in exhaustion. My husband and MIL looked at me like they thought I was lazy. But honestly, if my life depended on it, I could not have cleaned the rest. The vacuum is still sitting in our bedroom floor. And it will sit there until I can get enough strength together to do something about it.

Hang in there, Sweetie. We do understand.

Hugs,

Lisa

Try to just take care of yourself...to heck with laundry, etc. Relax. Allow your body to rest. It can be so frustrating to feel lousy, and to experience unexplained pain.
You are going to have to put your foot down with your docs. Tell them it's time for them to help you resolve these issues so that your pain can be reduced and so that you can live life again.
The most difficult part of dealing with this, I'm sure, besides the pain, is family. They walk around with blinders, pretending that things are normal. We all totally understand. I really don't know how people deal with this. I feel quite alone with the sxs, as I'm sure many people, especially those in limbo, do.
Keep on trying to cope, and to make the docs help you, dear. Don't give up!!

My docs really are trying to help, when I ask. I get that they just can't find it. And it's not so much the pain it's the feeling sick. Blech.

I'm doing 2 Aleve a day, too, Shashi. And I hear you on the vacuum lol. I just bought a dyson. I sweep and can't even wrap up the cord. Which is still better than I used to be where I couldn't push the vacuum.

But still, you think dh or somebody would see the vac in the middle of the house laying all over and wrap it up and put it away. Nope ain't happening.

plllllbbbbtttt.

I see the PCP the 17th and the neuro 23rd.

Till then it's Margarita hour.

Oh sis, I'm there with you. I'm tired, stressed out, depressed and sick of it all. I beg for help and people without holes in their brain forget! I can't even count the number of times I have fallen asleep sitting up at my desk or in a chair at home lately. Am I calling my neuro? Heck no! What good would it do? None.

Add to it all that we are now taking care of my Grandma. She is a bright spot, though, even if I am more tired. The funny thing is that she "gets it" because she feels so tired most of the time that she actually thinks that everyone else should be, too. She will say to me that I must be really tired and I can heartily agree that I am!

Pass me a margarita!

Hey Brain I hope you feel better soon

Brain,
I hope you get answers soon.

I am un-dx (in the MS world) since I am still a "probable", but I have a bunch of other dxs, most recently Hashimotos - so I'm sort of in Limbo but sortof not... if that makes sense... I still consider myself limbo since it seems that MS is so likely to be an additional dx but has yet to be proven.

Try to take care of yourself and know that there are a bunch of us dealing with Poop and trying to survive all these miserable symptoms and gosh awful hot summer !!!!

Snoods

I don't have big issues with pain, but I am on a regular, self-devised schedule of 2 ibuprofen and 2 extra-strength acetaminophen 3 times daily.

If I skip a dose, I notice it within a few hours!

COMBINING the over-the-counter painkillers really seems to work for me, keeping the achiness and the joint/tendon pain under control through the day and night.

You can combine painkillers as long as they're different TYPES of medications, and as long as you don't take more acetaminophen than it says on the bottle. The ibuprofen is more flexible--I'll take extra of that sometimes.

Nancy T.