[Debbie D]

Do you recall that story of 7 blind men brought into a room with an elephant and each describing what they sense is in the room? One describes the trunk, another describes the ear, etc.

I feel that all of my docs are the men and I'm the elephant (a pretty realistic description nowadays). No one seems to have the whole picture...one doc says this, another says that.

How can we get proper treatment if no one has a holistic picture?

[Blessings2You]

In the olden days, wasn't that what family doctors did? Now we go to specialists (ear, trunk, tail).

[misshayleesmom]

That is exactly how i feel,
I could not have described it better, my doc seems to me is "afraid" to give his opinion but yet he tells my husband privately that he always thought i had MS.
But then when i seen him he pretends that he never even mentioned it..and tells me "oh you can't say it's an attack because you haven't ben dx yet" I don't understand why he just can't be honest with me..I feel like shaking him..I need a doc who has my best interest..who has my back so to speak...I wish ER doc was my pcp..he looked at me..read my chart...seen my feet contorting in a unatural way..he actually physically released the spasticity in my feet...

I really don't understand my pcp..he is so afraid to say MS when i'm around...I'm in his office in a wheelchair...spasticity so bad...I really felt like he was uncomfortable around me..I finally had to tell him when I was on the examining table "will you LOOK at my feet!!"

I really feel like it makes him uncomfortable and he doesn't know what to say around me.
Very unprofessional.. Sorry this post is so long..I'm in so much pain right now and pcp won't give me anything for the spasticity because according to him there are too many side effects..so he will wait and see what neuro says..

[Dejibo]

I go to my MD and he sees shrunken, atrophied optic nerves. into the hospital I go. By the time I get an appointment with the eye surgeon my optic nerves look beautiful, but I still cant see well. She looks at me like I have a horn growing out of my head. Speak to the MS team and they say "oh what you are going thru is normal" speak to my MD who says "I dont see what they see" UGH! Then all the meds they had me on really messed up my tummy, and the GI says "no wonder! stop taking that!" and the MS team says "dont you dare get off that med!" OMG! im a rag doll being pulled in different directions!

Im sorry you continue to be on the rollar coaster. Hang in there.

[kicker]

You all on this board are pretty much experienced experts, but years have gone by and I have found no one like me, a particular kind of elephant. PPMS is it's own kind of animal but I've never found a PPMSer like me though! By default I'm the only expert on the Kickerbeast around. (and it's not like I really fully get it either)

[misshayleesmom]

Originally Posted by Dejibo

I go to my MD and he sees shrunken, atrophied optic nerves. into the hospital I go. By the time I get an appointment with the eye surgeon my optic nerves look beautiful, but I still cant see well. She looks at me like I have a horn growing out of my head. Speak to the MS team and they say "oh what you are going thru is normal" speak to my MD who says "I dont see what they see" UGH! Then all the meds they had me on really messed up my tummy, and the GI says "no wonder! stop taking that!" and the MS team says "dont you dare get off that med!" OMG! im a rag doll being pulled in different directions!

Im sorry you continue to be on the rollar coaster. Hang in there.

It must be so frustrating for you..

[TheSleeper]

Some of the most arrogant people I have met were doctors, unfortunately my own.

[Debbie D]

As I posted on Insights, I saw my urogynecologist yesterday to discuss some surgery.
I told him that the cardio docs said the med he has me on made my pulse drop too low...and they want me off of it. But I also told him the urge incontinence has really slowed since he doubled the dosage.

He told me that in fact this med raises heart rate 2 beats per minute...and that anticholinergics do NOT lower pulse rate...

My neuro was so mad that they took me off of the mood drug he'd put me on...he doesn't know that I'm sobbing at the slightest thing...

so who's right?

[ANNagain]

In the good old days, one of these guys would pick of the phone- with you there in the office- and settle this thing. No one seems to bother any more. The patient has to deliver all of these messages. We're the unpaid office help

I hope this all gets straightened out, Debbie.
ANN

[Blessings2You]

Plus stupid MS has SO many different tricks...it disguises itself as other stuff, and other stuff disguises itself as MS. So is this particular pain/ailment/weirdness MS? Something else? (gasp) Normal??

I'm wondering if, even if you got all the docs together in the same room with you, they'd agree on what's what?