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Old 02-27-2012, 04:26 AM #14
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
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Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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I'm so sorry you're having to deal with this, especially while you're still trying to work. I don't know how you manage it. After living with this difficult disease for 36 years, I've discovered it isn't enough that it takes away our whole lives eventually, but causes unbearable pain along the way. Like you, my nerve pain is excrutiating.

None of the usual pain killers work, only two Aleve daily seem to take the edge off. At my last neuro appointment about a month ago, he said there really isn't anything out there that helps a great deal with nerve pain. He did say there's a clinical trial coming up sometime (?) for a medication that deals with excessive/inappropriate laughing or crying in MS. Apparently they've found it helps with nerve pain also, so he's supposed to contact me when the trial starts as he thinks I'd be a good candidate. Keep your fingers crossed!!!! I'll keep you and everyone informed when it happens.

As things are now, it doesn't surprise me that the largest percentage of "Dr. Kevorkian's" patients -- or victims -- had MS. Dealing with this horrible pain continuously is enough to push anyone over the edge.

Hang in there..........
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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