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Old 02-27-2012, 04:26 AM #1
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I'm so sorry you're having to deal with this, especially while you're still trying to work. I don't know how you manage it. After living with this difficult disease for 36 years, I've discovered it isn't enough that it takes away our whole lives eventually, but causes unbearable pain along the way. Like you, my nerve pain is excrutiating.

None of the usual pain killers work, only two Aleve daily seem to take the edge off. At my last neuro appointment about a month ago, he said there really isn't anything out there that helps a great deal with nerve pain. He did say there's a clinical trial coming up sometime (?) for a medication that deals with excessive/inappropriate laughing or crying in MS. Apparently they've found it helps with nerve pain also, so he's supposed to contact me when the trial starts as he thinks I'd be a good candidate. Keep your fingers crossed!!!! I'll keep you and everyone informed when it happens.

As things are now, it doesn't surprise me that the largest percentage of "Dr. Kevorkian's" patients -- or victims -- had MS. Dealing with this horrible pain continuously is enough to push anyone over the edge.

Hang in there..........
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Old 02-27-2012, 11:15 AM #2
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Judy's post made me think of something that my dr had me try. Cymbalta. It works great on nerve pain. For me, the downside was that it made me have aggressive thoughts. I was on it for 3 days. During those 3 days though, I got relief from the nerve pain. I think they prescribe it to those with neuropathy due to diabetes. It may be worth checking in to.
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Old 02-27-2012, 11:44 AM #3
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Just for what it's worth, Cymbalta did nothing for me, but as with MS -- we're all different. Good luck finding some relief!
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Old 02-28-2012, 06:00 PM #4
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A bit of extra aggression???????? JUST what I need!!!!!!!

It is hard working on and more so, hiding the reason from friends and colleagues. Taking the lift when everyone else takes the stairs and sneering at me for being 'lazy'. Walking slowly, holding onto handrails, speed wobbles and talking rubbish. All in a day's work. It's exhausting.
And if I could only find the perfect pain killer that lets me stay awake too, then I'd be sorted.
I must admit since posting this I've been experimenting with Tramadol and I'm finding it more and more useful. It's used for shingles pain which made me think it would be good for me. Only supplied in 20's though which is annoying.

Thanks for your support people
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