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#1 | |||
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Member
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I don't think anyone is whining or complaining. You are just stating the trials & tribulations that ms has put you through. People who haven't had a close encounter with ms mostly don't understand. Some people do but not all. People don't understand when I tell them I can't afford the medicines or that I don't like to make social plans too far in advance. I never know how I am going to feel day to day. MS is very individual and doesn't affect 2 people the same.
Just keep voicing your issues. It may help someone. ![]() |
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"Thanks for this!" says: | Blessings2You (03-09-2012), Judy2 (03-19-2012), misshayleesmom (03-09-2012), SallyC (03-09-2012), tamiloo (03-10-2012) |
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#2 | |||
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Grand Magnate
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People think there is a magic pill or doctor out there for whatever ails you. Or look at Mystery Disease. Everything gets figured out neatly in an hour! And there are government safety nets for every problem, medical or financial. People can be so naive.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | Blessings2You (03-09-2012), ginnie (03-09-2012), Judy2 (03-19-2012), SallyC (03-09-2012), tamiloo (03-10-2012) |
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#3 | |||
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Wise Elder
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B2Y - I totally get what you are saying. It such a good feeling to know that I can come on here and do some complaining and you all will understand. To complain to others is hard as they just don't understand and, unless they end up with MS, they never will. As my mom said, it is really hard for those without a chronic illness to understand what it is like living with a chronic illness and pain on a daily basis. She was a nurse and took care of a woman who had MS. She had small children too and really had a rough time accepting what she was going through. But, she told this woman the same thing and ask her pastor to come visit this woman as she really needed someone to talk to.
And, it's great to know that we are all in the same boat. We may not have the same symptoms and things like that, but we all understand. |
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"Thanks for this!" says: | Blessings2You (03-09-2012), ginnie (03-09-2012), Judy2 (03-19-2012), misshayleesmom (03-09-2012), SallyC (03-09-2012), tamiloo (03-10-2012) |
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#4 | |||
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Member
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Not a big announcer to friends & family either...suffer in silence, unless family or co-workers comment or find it necessary to take action. Stopped any casual drinking...not using processed sugars & trying to do the "healthy" eating. Haven't gotten to start the magic daily journal thing; although, I suspect it would help (if only I could remember to buy the dang thing, lol). Any suggestions on what would constitute a "Whine & Cheese" moment? Not even sure why I am here...still no diagnosis...Neuro said, "we are on the "tip" of something..." whatever that means????
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It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers. . |
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#5 | |||
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Member
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Quote:
The iceberg??? I hope you don' t have to jump, but if you do, there are lots of fabulous people here to either catch you - or swim with you ![]()
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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#6 | |||
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Elder
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Here I am, back in the safe place!
Talking to someone on the phone earlier, heard myself making the SAME comments about MS fatigue that I've made multiple times before, couldn't stop myself even when I realized it, even when I could visualize my friend's eyes glazing over. I thought I was so OVER that, did all my whining here, but obviously I backslide once in a while.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: | SallyC (03-19-2012) |
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#7 | |||
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Member
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Quote:
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__________________
It isn't a quest; it's the unknown reaction to the unaswered question. If you don't ask it, you'll never know. The journey, needs answers. . |
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"Thanks for this!" says: | Blessings2You (03-19-2012), SallyC (03-19-2012) |
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