That is exactly how i feel,
I could not have described it better, my doc seems to me is "afraid" to give his opinion but yet he tells my husband privately that he always thought i had MS.
But then when i seen him he pretends that he never even mentioned it..and tells me "oh you can't say it's an attack because you haven't ben dx yet" I don't understand why he just can't be honest with me..I feel like shaking him..I need a doc who has my best interest..who has my back so to speak...I wish ER doc was my pcp..he looked at me..read my chart...seen my feet contorting in a unatural way..he actually physically released the spasticity in my feet...

I really don't understand my pcp..he is so afraid to say MS when i'm around...I'm in his office in a wheelchair...spasticity so bad...I really felt like he was uncomfortable around me..I finally had to tell him when I was on the examining table "will you LOOK at my feet!!"

I really feel like it makes him uncomfortable and he doesn't know what to say around me.
Very unprofessional.. Sorry this post is so long..I'm in so much pain right now and pcp won't give me anything for the spasticity because according to him there are too many side effects..so he will wait and see what neuro says..

I go to my MD and he sees shrunken, atrophied optic nerves. into the hospital I go. By the time I get an appointment with the eye surgeon my optic nerves look beautiful, but I still cant see well. She looks at me like I have a horn growing out of my head. Speak to the MS team and they say "oh what you are going thru is normal" speak to my MD who says "I dont see what they see" UGH! Then all the meds they had me on really messed up my tummy, and the GI says "no wonder! stop taking that!" and the MS team says "dont you dare get off that med!" OMG! im a rag doll being pulled in different directions!

Im sorry you continue to be on the rollar coaster. Hang in there.

You all on this board are pretty much experienced experts, but years have gone by and I have found no one like me, a particular kind of elephant. PPMS is it's own kind of animal but I've never found a PPMSer like me though! By default I'm the only expert on the Kickerbeast around. (and it's not like I really fully get it either)

It must be so frustrating for you..