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Old 03-25-2012, 12:38 PM #1
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Quote:
Originally Posted by SallyC View Post
You mean that the IV steroids caused your paralysis? Wowee!
Well, they triggered an attack of paralysis.

I have HypoKalemic Periodic Paralysis. The steroids aggravated it and caused a 16 hour attack. I went in and out of attacks for the next five days. When in an attack, I cannot move in any way, not even my face, and breathing becomes difficult. I had 3 sternum rubs in less than 12 hours and could not respond to one of them. Boy let me tell you what though, I wanted to punch the last guy who did one, those things HURT!

So steroids are a big no-no for me. Now we know My next appointment with my neuro after getting out of the hospital she told me that if she ever recommended steroids to me again I should run screaming from the room, or hobble, whichever the case may be.

It's okay though, just means we have to find ways to be creative when treating anything to do with the MS because a lot of meds affect the periodic paralysis.
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Old 03-26-2012, 05:45 AM #2
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Wow, that is amazing. You must have been terrified! I had no idea that steroids could bring on paralysis. I had awful symptoms from using huge dose steroids (not for MS), and I too will never go on them again unless it is a life and death situation.
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Old 03-26-2012, 09:16 PM #3
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Wow, that is amazing. You must have been terrified! I had no idea that steroids could bring on paralysis. I had awful symptoms from using huge dose steroids (not for MS), and I too will never go on them again unless it is a life and death situation.
Well I don't know what they can do in a person who doesn't have periodic paralysis already. This wasn't my first attack of paralysis, it was my worst by far though.

Sorry you have issues with the steroids as well.
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