the mild ON that I was having suddenly turned into a flaming case of ON last week. I went to the eye doctor, and she said she'd send the info to my neuro and told me to go see the neuro as soon as I could. (why do flares always happen on fridays?)

My vision in my right eye is now probably about 93% screwed up. It looks like a fogged over window that also has vaseline smeared on it too. I can see some text on my computer with that eye if it's dark. I keep having to close my eye so I can read or watch tv with my left eye. (had ON in the left eye a couple of times, so it's weird to think of my left eye as the "good" eye right now)

The thing that's bugging me the most about this, is the pain in my optic nerve. My eye has hurt for four or five weeks now, and it built up into a crescendo over the weekend. I think I'd be able to deal with this better if it would just stop hurting! the pain comes from just behind my right eye, and sometimes goes above my eye into the forehead, and it's also gone thru the back of my brain and down the right side of my neck. Really wishing it would stop.

hoping my neuro will throw pain pills at me tomorrow...ibuprofen and tylenol isnt helping at all. Valium sort of helps. not sure if the valium is stopping the pain or if it's making me not care as much about it. I've got a small amount of 5mg tablets that I've been breaking into halves and 1/4 pieces. They knock me out so bad that I've been trying to only take a 1/4 at a time. Helps, but doesnt stop it.

I dont like drugs, usually cant stand taking tylenol for anything. I especially dont like taking things like valium.


someone please tell me the pain from optic neuritis will let up soon...First time I had ON, it hurt for about a week, built up to the worst pain ever, and then left. This time it's been four or five weeks. I just want it to quit. (or I want drugs to make me not give a poo about it for awhile)

oh, and if I wasnt already in pain and uncomfortable, the rest of my body has more spasticity this week. (right side of my ribs feels like there's a boa constrictor trying to strangle me, and my stomach and feet keep getting muscle spasms. Just wish it would all leve me alone.


not sure if I want steroids for this. Did oral steroids over Xmas that made me a little...psycho, and I dont like the other side effects...plus since it's ON, I'd have to get IVSM, and I really dont like the side effects from that either...and IVSM is ridiculously expensive.