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Old 04-23-2012, 10:25 PM #1
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I actually had a neuro, years ago, tell me that someone who doesnt have MS and takes the dmd's would get very sick. Liver damage, heart disease, etc. Not sure how accurate it is for just those without MS, as I recall when I was on beta 10yrs ago, there was always a concern about my liver. I was getting liver function tests every 3 months. I think there is always a risk with each and every one of these dmd's. Its such a very personal choice to take a dmd or not to take a dmd.
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Old 04-26-2012, 08:00 PM #2
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Quote:
Originally Posted by KittyLady View Post
I actually had a neuro, years ago, tell me that someone who doesnt have MS and takes the dmd's would get very sick. Liver damage, heart disease, etc..
I'd have to disagree with your neuro and thankfully mine said it wouldn't have any additional side effects other than whatever might occur in me whether or not I have MS. So in my understanding if you are someone whose liver enzymes will get wonky from being on a DMD that would happen MS or not. I wouldn't let the off chance that we might have been misdiagnosed sway me from starting a dmd. I don't think there are very high numbers of people being misdiagnosed. I'd be happy to put away the Copaxone after all these years if it was all a mistake but I'm not that lucky.

I haven't ever heard this and can't think of any research that would indicate these medications might cause problems in someone without MS. In fact they aren't even all that effective in targeting MS!
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Old 04-26-2012, 08:17 PM #3
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The only one I can remember is the woman who died of PML, after taking Tysabri, and then was found not to have had MS. I think her husband sued everybody..
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