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I was involved in a MS support group, and there was alot of RRMS bashers there. Someone even said that RRMSers dont really know MS, and yet all the meds out there were for RRMS, and why were RRMSers so special!!
I dont think its right that those who are not RR should try to make us that are feel guilty about it. We cant control this disease, or who gets it or the severity of it. And we certainly DO know what MS is like. Im not the one in charge of the science behind the dmd's. I personally would love to know that there are dmd's for spms, ppms, etc. Now, Im not saying all those who are not rrms feel this way. But out of the last 2 support groups Ive been to, this was the general thinking. We are all in the same boat. Some have been in the boat longer and have been exposed to the "elements" more. I personally would never want to "attack" a fellow MSer. Why turn on each other? |
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