Hmmm, metabolic disorder. I know I had off the charts high triglycerides a couple years after dxd with MS. I had to take meds for awhile but have it under control with diet now. My HDL and LDL were completely normal. Anyone else?

msarkie, I have high triglycerides and low good cholesterol. The low good cholesterol is common to most patients with Polycythemia Vera, my third disease. No one knows why.
Or if they do they aren't telling. Porphyria is called a metabolic disease, although it's also called a blood disorder, and neurovisceral disoder....I therefore don't contemplate MS as a singularity any more and can't which which did what in every case.

I too had high triglycerides and HDL, although I have lowered these considerably by cutting fat in my diet. Still, now that my numbers are down (not quite "normal" yet), I am still having MS symptoms that are persistent. Could it be that once the damage is started, it doesn't go away, even if the original problem is corrected?

Linda

Some damage to nerves is permanent. I guess I should say damage to brain or spinal cord, felt in the nerves. Some of it heals. But being on a low fat diet is very important for some kinds of MS, like mine. I was a patient of Dr. Swank who made the very low fat diet for MS well known. I probably will never get rid of high triglycerides. I can't take any of the meds that do that.

my first recognizable sign was polycythemia. They spoke of donating blood to throw it away, and other interventions. I quit smoking (see other thread) and it went away. My MD said she rarely saw that condition just go away.

Its been a round robin of medical BS. From low BP to skin conditions to dry eyes. I hate this stupid disease.

Good grief, Dejibo, what are you saying, that polycythemia is indicative of MS? I don't think so...are you saying you did have it? Perhaps you had the kind which is symptomatic of a disease process, not a disease in itself. That IS called Polycythemia. But what I have is Polycythemia Vera, a disease in itself which is supposedly caused by a mutation in the bone marrow, cause unknown. It can be 95% verified by a test for the Jak2 mutation, which may not be the only mutation involved but is diagnostic. Why don't you have this blood test--it's easy, wait for results, and an easy diagnosis unless you are among the 5% who have to wait for other confirmation.
Yes, I have my blood thrown away periodically. Keeps red cells lower. Took p32 to lower platelets, which worked. Since you are like me, drug sensitive to many drugs (not all) you probably could not take the chemo for this. You could take the p32 and phlebs.
Well I won't go on as this is a mystery I can't understand, what you have said. More?